by IPWSO | Aug 26, 2022 | Blog
The Professional Providers and Caregivers Board of IPWSO recently conducted a survey looking for evidence of employment and work placements opportunities for people with PWS around the world. The responses from the survey revealed the following points. Opportunities...
by IPWSO | Aug 25, 2022 | News
We are hosting a webinar with ASPAE about endocrinology and Prader-Willi syndrome in Africa: at 5pm West Africa Time on Thursday 8th September 2022. Prader-Willi syndrome (PWS) is a complex and rare neurodevelopmental condition. Studies have shown that between 1 in...
by IPWSO | Aug 8, 2022 | News
The General Assembly is the decision-making body of IPWSO, where IPWSO members can elect the Trustees, influence future plans and hear reports from the past 3 years. The General Assembly of IPWSO was held at 5pm Irish Standard Time on Sunday 10th July 2022 at the...
by IPWSO | Jul 12, 2022 | News
The General Assembly of IPWSO has agreed to extend the bidding period for potential hosts to submit proposals to hold the 12th International Prader-Willi Syndrome Organisation conference in 2025. This is an exciting opportunity to bring international speakers and...
by IPWSO | Jun 14, 2022 | Blog
El pasado 31 de mayo se inauguró la primera residencia especializada para personas con Síndrome de Prader-Willi en España. A la inauguración asistió la Ministra de Sanidad, Carolina Darias, junto con autoridades regionales y locales. La residencia, denominada “Mil...