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What is the treatment for Prader-Willi syndrome?

What is the treatment for Prader-Willi syndrome?

This is one of the most common questions asked particularly by new parents and family members of a new-born baby or child with PWS. The syndrome is rare and in many parts of the world there is limited access to support and information. Most people, including many...
Adapting to life in lockdown

Adapting to life in lockdown

Karin writes about life with her daughter in South Africa in a post originally shared on the Prader-Willi Syndrome Support – South Africa facebook page and reproduced here with permission. People with Prader-Willi syndrome (PWS) have some quite unusual traits...
Before and after Ștefan

Before and after Ștefan

Chapter 1 Our story is simple and yet rare. I will be the storyteller (Georgian), not because I would know more (by no means), nor because I would tell better (nor that), but because I want to take on this burden at least. We were two people, a couple, who lived a...