Our Vision and Strategy
We are working to achieve a world where people with PWS and their families receive the services and support they need to fulfil their potential and achieve their goals. We do this by working together with families, professionals and researchers from around the world, helping to link people together and inspire them to share ideas and knowledge about how best to manage Prader-Willi syndrome. Find out more about our work by reading our current Strategy and our latest Annual Report.
A world where people with PWS and their families receive the services and support they need to fulfil their potential and achieve their goals.
To unite the global PWS community to collectively find solutions to the challenges of the syndrome and to support and advocate for people with PWS and their families, PWS associations, and professionals who work with people with PWS.
Our Strategy 2024 to 2026
We have exciting plans for the future, find out more about our work and how we are collaborating with others to achieve our goals.
IPWSO is registered as a charity (non-profit) in England and Wales. Our constitution can be read here.
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.