Sign up to our newsletter

Contact Us

  1. Home
  2.  » 
  3. About Us
  4.  » Our Vision and Strategy

Our Vision and Strategy

We ​are working to achieve a world where people with PWS and their families receive the services and support they need to fulfil their potential and achieve their goals. We do this by working together with families, professionals and researchers from around the world, helping to link people together and inspire them to share ideas and knowledge about how best to manage Prader-Willi syndrome. Find out more about our work by reading our current Strategy and our latest Annual Report.

 

Our Vision

​A world where people with PWS and their families receive the services and support they need to fulfil their potential and achieve their goals.

Our Mission

To unite the global PWS community to collectively find solutions to the challenges of the syndrome and to support and advocate for people with PWS and their families, PWS associations, and professionals who work with people with PWS.

Our Strategy 2024 to 2026

We have exciting plans for the future, find out more about our work and how we are collaborating with others to achieve our goals.

View our previous Strategy 2020-2023 here.

Our Constitution

IPWSO is registered as a charity (non-profit) in England and Wales. Our constitution can be read here.

< Back to About Us

International Community

IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.

three adults and a child smiling

Information for
Families

Find useful guides, research and information to help families manage PWS.

One man one lady at conference

Information for Medical Professionals

The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

Information for
Professional Caregivers

Sharing international knowledge among professional service providers throughout the world.

What is PWS?

Translated Guides

Find support in my country