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PWS Information

Prader-Willi syndrome is rare and most people, including many physicians and caregivers as well as new parents and family members, are not familiar with this syndrome. We have produced a collection of guides and resources about Prader-Willi syndrome for families, medical professionals and other people involved in the care and support of people with Prader-Willi syndrome.

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What is PWS?

Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are born with Prader-Willi syndrome. It affects all races and both sexes equally. Find out more about what causes PWS and how it affects a person living with it.

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Information for

Find useful guides, research and information to help families manage PWS.

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Information for Medical Professionals

The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

Information for

Sharing international knowledge among professional service providers throughout the world.

Translated Guides

IPWSO has had many articles translated. Most of these relate to family care of a person with PWS and some are medical articles.
You are welcome to download and distribute these articles, but please quote IPWSO as the source.