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Video guides to all aspects of PWS

These resources include presentations by leading international experts on a range of common issues that can affect people with PWS. We would encourage you to share these with friends and colleagues.

Prader-Willi syndrome: what you need to know

Presentations on topics including: Growth hormone treatment, Managing nutrition for children, Managing obesity, Gastrointestinal issues, Sleep and sleep disorders, Orthopaedic issues

Our YouTube channel

Subscribe for free and view all our Prader-Willi syndrome videos. A great selection of information from experts around the world. Like and share with friends and colleagues.

Leadership ECHO®

Videos about how we can make changes in our respective countries and influence governments, so that the necessary services and supports are put in place for the benefit of people with PWS.

Health ECHO®

Videos to assist health professionals who work with people with PWS to deepen their understanding of the syndrome. Topics include Mental Health, Endocrinology, Nutrition and more.

Caregivers’ ECHO®

These videos are for Caregivers and Providers who are in contact with people with PWS in an all-day setting. They examine and analyse current methods, and discuss solutions for common challenges.

SPW Latino América ECHO®

Videos delivered in Spanish and managed by RedLASPW, the Latin American Network of Prader-Willi Syndrome, a network of professionals from healthcare, education, research and related fields.

International Community

IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.

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Information for

Find useful guides, research and information to help families manage PWS.

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Information for Medical Professionals

The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

Information for
Professional Caregivers

Sharing international knowledge among professional service providers throughout the world.

What is PWS?

Translated Guides

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