1. Home
  2.  » Get Involved

Get Involved

You can get involved in IPWSO and the international PWS community in many different ways. We are a truly global organisation with people like you involved as advisers, supporters and donors spread around the world.

You can make a difference by supporting our work, find out more.

six people in front of christ the redeemer

Support Us

Your donation could help support our work in many areas to benefit people with PWS, find out more.
large group of people outdoors

Starting a PWS Organisation

You might be just one family, or have a small network or a full association, find the right path to strengthen family support in your country.

Lady wearing white jacket holding a child's hand

Give in Memory

You can donate to IPWSO in a special way that honours the memory of your loved one.

young boy with blonde hair and blue glasses

Share your Story

Tell us your story and help raise awareness of what life is really like with PWS around the world.

two ladies wearing black and white outfits

Friends of IPWSO (USA)

You can support IPWSO if you live in the USA, find out more.

large group of people infront of green wall under trees

Sign up to our newsletter

You can keep up to date with all our news and stories from around the world.


You can get involved in many ways with IPWSO’s work, from joining our Trustees or Boards to helping with a project or fundraising. We also have opportunities for you to volunteer at our conferences and events. If you would like to use your skills to support us please get in touch!

International Community

IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.

three adults and a child smiling

Information for

Find useful guides, research and information to help families manage PWS.

One man one lady at conference

Information for Medical Professionals

The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

Information for
Professional Caregivers

Sharing international knowledge among professional service providers throughout the world.

What is PWS?

Translated Guides

Find support in my country