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Get Involved

There are many ways to get involved in IPWSO and the international PWS community. We are a truly global organisation with advisers, supporters and donors spread around the world.

Find out how you can make a difference by supporting our work.

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Support Us

Your donation could help support our work in many areas to benefit people with PWS, find out more.
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Starting a PWS Organisation

From one family to a small network to a full association, find the right path to strengthen family support in your country.

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Give in Memory

Donate to IPWSO in a special way that honours the memory of a loved one.

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Share your Story

Tell us your story and help raise awareness of what life is really like with PWS around the world.

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Friends of IPWSO (USA)

Find out how you can support IPWSO if you live in the USA.

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Sign up to our newsletter

Keep up to date with all our news and stories from around the world.


There are many ways to get involved with IPWSO’s work from joining our Trustees or Boards to helping with a project or fundraising. We also have opportunities to volunteer at our conferences and events. If you would like to use your skills to support us please get in touch!

International Community

IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.

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Information for

Find useful guides, research and information to help families manage PWS.

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Information for Medical Professionals

The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

Information for
Professional Caregivers

Sharing international knowledge among professional service providers throughout the world.

What is PWS?

Translated Guides

Find support in my country