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Summit Meetings

IPWSO Summit Meetings provide an international online forum at which key issues of relevance to people with PWS and their families, and our international community, will be discussed.  People living with PWS and their families, clinicians, researchers, professional caregivers, PWS association leaders, pharmaceutical company representatives, and others with a personal or professional interest in PWS are invited to participate.

In order to preserve the time during the workshop for small group discussions, participants will receive in advance short materials prepared for the meetings by subject experts.

Do you have a key issue which you think should be the focus of an IPWSO Summit Meeting? If you have suggestions for topics of relevance to people with PWS and their families, and our international community, which you think should be discussed at an IPWSO Summit Meeting, please let us know at the link below.

    IPWSO’s first Summit Meeting, on Newborn screening for Prader-Willi syndrome and other chromosome 15 abnormalities, took place on Sunday April 3, 2022. We will share the details of the next meeting here as soon as it is announced.

      IPWSO strives to make collaboration in our community as accessible as possible. If you would like to take part but feel you may experience difficulty with language or any other aspect of communicating with the group, we encourage the support of interpreters, family members or caregivers. Please let us know if you would like to plan any special arrangements and we’ll be delighted to support this.

      Previous Summit Summaries

      Newborn screening for PWS

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      International Community

      IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.

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