Our Blog
Covering issues, stories and the latest news regarding Prader-Willi syndrome.
A blog written by François Besnier for Prader-Willi France and shared with permission.
Earlier this month we held a Zoom meeting to bring together the PWS community in Africa.
As part of our work celebrating IPWSO's 30th Anniversary in 2021, we asked members of the global PWS community to make films to highlight the challenges they face, as well as the achievements and developments that are happening around the world.
Although hypogonadism is prevalent in men and women with PWS, knowledge about this condition is limited...
In our newest Famcare paper we look at the importance of meaningful activities for people with PWS.
Lauren's story has not been an easy one - on Lauren - or her family. Her mum Joanne told us more...
International Community
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for
Families
Find useful guides, research and information to help families manage PWS.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
Information for
Professional Caregivers
Sharing international knowledge among professional service providers throughout the world.