Our Blog
Covering issues, stories and the latest news regarding Prader-Willi syndrome.
Many of the people we work with at IPWSO observe the month of Ramadan. How does the period affect families and in particular how does the aspect of fasting affect people with PWS?
Nikolinka Yordanova explains why free diagnosis is so important in her country of Bulgaria...
We often hear from parents and doctors, who ask us at what stage they should suspect a diagnosis of PWS and how to obtain a diagnosis.
Charlotte Höybe writes about our guidance on sex hormones, fertility and sexuality in people with PWS.
Around the world people with PWS and their families are breaking down barriers to achieve what others consider a normal life...
Do national laws matter? IPWSO President Tony Holland writes about the importance of education and of enshrining a right to education in national laws.
At a recent Leadership ECHO® meeting the focus was on the provision of education for children with PWS.
After the presentation by Larry ...
International Community
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for
Families
Find useful guides, research and information to help families manage PWS.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
Information for
Professional Caregivers
Sharing international knowledge among professional service providers throughout the world.