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Our Blog

Covering issues, stories and the latest news regarding Prader-Willi syndrome.

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Kate’s story

Kate’s story

Kate talks about life with PWS, what it was like growing up and what her life is like now that she lives in a group home.
Abrazos que hablan, Un Prader-Willi en la familia: reseña del libro

Abrazos que hablan, Un Prader-Willi en la familia: reseña del libro

Abrazos que hablan. Un Prader-Willi en la familia, escrito por Anna Ripoll, asigna todos los beneficios a la Asociación Catalana SPW para la investigación del síndrome / Hugs that speak. A person with Prader-Willi in the family, written by Anna Ripoll, all proceeds going to the Catalan ...
Enjoying the holidays: tips from parents around the world

Enjoying the holidays: tips from parents around the world

Festivals, festivities and holidays form part of all cultures. Yet, for many reasons, they pose special challenges for people with PWS and their families. We asked a selection of parents from around the world for their advice on how best to manage during times of celebration.
Building a future for our son with Prader-Willi syndrome

Building a future for our son with Prader-Willi syndrome

Janneth and her husband are building a farm in Colombia to provide employment for their 13 year old son as he grows up. Granjeritos de Alejandria is a family business, created by Cristian and Janneth and their two young children Juan Alejandro and María Alejandra. Cristian and Juan Alejandro ...
Putting PWS on the map

Putting PWS on the map

What are the challenges of discussing Prader-Willi syndrome at an international level and how can we make sure that the needs of people with PWS are included when decisions and new policies are made?

International Community

IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.

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Information for
Families

Find useful guides, research and information to help families manage PWS.

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Information for Medical Professionals

The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

Information for
Professional Caregivers

Sharing international knowledge among professional service providers throughout the world.

What is PWS?

Translated Guides

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