Our Blog
Covering issues, stories and the latest news regarding Prader-Willi syndrome.
Around the world people with PWS and their families are breaking down barriers to achieve what others consider a normal life...
Do national laws matter? IPWSO President Tony Holland writes about the importance of education and of enshrining a right to education in national laws.
At a recent Leadership ECHO® meeting the focus was on the provision of education for children with PWS.
After the presentation by Larry ...
IPWSO President, Professor Tony Holland, writes about our international advocacy work and asks for your views... IPWSO wants to hear from you - how can we best help raise awareness both nationally and internationally about the needs of people with PWS and that of their families?
The Georgian Ministry of Health has made the decision to provide free growth hormone to people with PWS.
Rare Disease Day takes place on Sunday 28th February. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on peoples' lives.
The campaign targets primarily the general public and also seeks to raise ...
Kate talks about life with PWS, what it was like growing up and what her life is like now that she lives in a group home.
International Community
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for
Families
Find useful guides, research and information to help families manage PWS.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
Information for
Professional Caregivers
Sharing international knowledge among professional service providers throughout the world.