Our Blog
Covering issues, stories and the latest news regarding Prader-Willi syndrome.
We are delighted to welcome PWS China to the IPWSO family. We asked them to tell us a bit about their work.
How does it feel to be the host for the next international conference? An interview with Gary Brennan, National Development Manager, Prader-Willi Syndrome Association of Ireland, on the International Prader-Willi Syndrome Organisation Conference 6-10 July 2022, Limerick, Ireland.
We conducted a survey about COVID-19 and People with PWS and the results have just been published.
Rare Disease Day is, “the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.”
IPWSO Chief Executive Officer, Marguerite Hughes, reflects on IPWSO's 30th Year and our future plans.
A blog written by François Besnier for Prader-Willi France and shared with permission.
International Community
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for
Families
Find useful guides, research and information to help families manage PWS.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
Information for
Professional Caregivers
Sharing international knowledge among professional service providers throughout the world.