Our Blog
Covering issues, stories and the latest news regarding Prader-Willi syndrome.
Kate has PWS and wants more people to understand how it affects her life.
What are the challenges of celebrating Ramadan when you live with PWS?
There is lots of research going on in China, our interns April and Lauren tell us more...
We went to the ASPAE conference in Cameroon to talk to endocrinologists, paediatricians, psychiatrists and nurses about PWS.
IPWSO's Famcare Board provides information and support to families around the world.
How to support someone with PWS to manage their temperature...
International Community
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for
Families
Find useful guides, research and information to help families manage PWS.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
Information for
Professional Caregivers
Sharing international knowledge among professional service providers throughout the world.