Our Blog
Covering issues, stories and the latest news regarding Prader-Willi syndrome.
As part of our work celebrating IPWSO's 30th Anniversary in 2021, we asked members of the global PWS community to make films to highlight the challenges they face, as well as the achievements and developments that are happening around the world.
Although hypogonadism is prevalent in men and women with PWS, knowledge about this condition is limited...
In our newest Famcare paper we look at the importance of meaningful activities for people with PWS.
Lauren's story has not been an easy one - on Lauren - or her family. Her mum Joanne told us more...
Many of the people we work with at IPWSO observe the month of Ramadan. How does the period affect families and in particular how does the aspect of fasting affect people with PWS?
Nikolinka Yordanova explains why free diagnosis is so important in her country of Bulgaria...
International Community
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for
Families
Find useful guides, research and information to help families manage PWS.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
Information for
Professional Caregivers
Sharing international knowledge among professional service providers throughout the world.