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Our Blog

Covering issues, stories and the latest news regarding Prader-Willi syndrome.


Ramadan, fasting and PWS

Ramadan, fasting and PWS

Many of the people we work with at IPWSO observe the month of Ramadan. How does the period affect families and in particular how does the aspect of fasting affect people with PWS?
A right to an education?

A right to an education?

Do national laws matter? IPWSO President Tony Holland writes about the importance of education and of enshrining a right to education in national laws. At a recent Leadership ECHO® meeting the focus was on the provision of education for children with PWS. After the presentation by Larry ...

International Community

IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.

three adults and a child smiling

Information for

Find useful guides, research and information to help families manage PWS.

One man one lady at conference

Information for Medical Professionals

The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

Information for
Professional Caregivers

Sharing international knowledge among professional service providers throughout the world.

What is PWS?

Translated Guides

Find support in my country