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Our Blog

Covering issues, stories and the latest news regarding Prader-Willi syndrome.

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Welcome to PWS China!

Welcome to PWS China!

We are delighted to welcome PWS China to the IPWSO family. We asked them to tell us a bit about their work.
What is it like to host an IPWSO conference?

What is it like to host an IPWSO conference?

How does it feel to be the host for the next international conference? An interview with Gary Brennan, National Development Manager, Prader-Willi Syndrome Association of Ireland, on the International Prader-Willi Syndrome Organisation Conference 6-10 July 2022, Limerick, Ireland.
IPWSO supports Rare Disease Day 2022

IPWSO supports Rare Disease Day 2022

Rare Disease Day is, “the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.”

International Community

IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.

three adults and a child smiling

Information for
Families

Find useful guides, research and information to help families manage PWS.

One man one lady at conference

Information for Medical Professionals

The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

Information for
Professional Caregivers

Sharing international knowledge among professional service providers throughout the world.

What is PWS?

Translated Guides

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