Membership
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella. Please see our Constitution for further details.
Member countries are subscribed members with voting rights. To be eligible to join as a member you must have a constitution and be formally registered in your country. Associate Member Countries have professional and/or parent contacts who are working with people with PWS but no formal association. In order to contact the local representative or delegate of any member or associate country, see our Country Members page.
Why join IPWSO?
Global Voice
Together we have a strong, global voice to call for better care, support and awareness of PWS.
Support Network
Together we can support each other. Our network of members ranges from old, well established organisations to brand new ones! We can support and guide your development as an association and give you access to our expert networks.
Outreach
Together we can support people in countries where there is no association and where knowledge and access to care may be very limited.
Community
Together we can make the global PWS community aware of the many free services, including diagnostic testing, offered by IPWSO.
One Organisation
Together we are IPWSO. Have a say in how IPWSO is run at our General Assembly and get more involved in our events.
Membership fees
€50
Country Associations with less than 50 members
€100
Country Associations with 50-99 members
€200
Country Associations with 100 – 299 members
€500
Country Associations with 300 – 499 members
€1,000
Country Associations with 500+ members
Associate Membership
Countries where there is no constituted PWS Association, but where there is either (or both) a Professional Delegate, or Parent Delegate may claim Associate Membership. This entitles these delegates to receive all information, support, and educational knowledge from IPWSO via our Newsflash, social media, or direct access to IPWSO and its boards for help and support. Associate Membership does not entitle voting at the General Assembly.
Associate Membership of secondary PWS Associations
Where there is another PWS Association or organisation in a country, this association or organisation can apply for IPWSO Associate Membership and receive the same benefits and access to IPWSO as ordinary Associate Membership (above). There is also an entitlement for a Parent Delegate, a Professional Delegate, and a Caregiver Delegate as representatives of the Association. However, there is no entitlement for voting at the General Assembly as any voting decision must be made in conjunction with the primary PWS Association of that country.
Country Members
Member countries are subscribed members with voting rights.
Click the link below for a full list of our current members and to find out more.
International Community
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for
Families
Find useful guides, research and information to help families manage PWS.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
Information for
Professional Caregivers
Sharing international knowledge among professional service providers throughout the world.