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Membership

IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella. Please see our Constitution for further details.

Our members are subscribed PWS associations with voting rights. To be eligible to join as a member you must have a constitution and be formally registered in your country. Members of the wider IPWSO Network are professional and/or parent contacts who are working with people with PWS but who have no formal association. 

 

Why join IPWSO?
Global Voice

Together we have a strong, global voice to call for better care, support and awareness of PWS.

Support Network

Together we can support each other. Our network of members ranges from old, well established organisations to brand new ones! We can support and guide your development as an association and give you access to our expert networks.

Outreach

Together we can support people in countries where there is no association and where knowledge and access to care may be very limited.

Community

Together we can make the global PWS community aware of the many free services, including diagnostic testing, offered by IPWSO.

One Organisation

Together we are IPWSO. Have a say in how IPWSO is run at our General Assembly and get more involved in our events.

Membership fees

€50

PWS Associations with less than 50 members

€100

PWS Associations with  50-99 members 

€200

PWS Associations with 100 – 299 members

€500

PWS Associations with 300 – 499 members

€1,000

PWS Associations with 500+ members

The IPWSO Network

In regions where there is no constituted PWS Association, a Professional Delegate and/or Parent Delegate may join the IPWSO Network directly.  This entitles these delegates to receive information, support, and educational knowledge from IPWSO. Being part of our Network does not entitle voting at the General Assembly.

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PWS Associations

Our members are subscribed associations with voting rights.
Click the link below for a full list of our current members and to find out more.

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IPWSO Delegates

Each member association appoints Parent and Professional Delegates to be their representatives. When applicable, a Caregiver Delegate is also appointed.

International Community

IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.

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Information for
Families

Find useful guides, research and information to help families manage PWS.

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Information for Medical Professionals

The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

Information for
Professional Caregivers

Sharing international knowledge among professional service providers throughout the world.

What is PWS?

Translated Guides

Find support in my country