Members around the world

Our members are constituted PWS Associations representing families around the world. They pay an annual subscription fee based on the number of families in their membership. The subscription year runs from 1 January to 31 December.

Find out how to become a member

boy in green rugby top holding Ireland flag behind him

Our member associations are subscribed members with voting rights. They are indicated on the map in pink. Use the dropdown to see the associations by continent and use the links to visit the local member website or social pages. Each registered PWS Association appoints Parent and Professional Delegates to be their representatives. When applicable, a Caregiver Delegate is also appointed.

The IPWSO Network around the world

We have contacts in many countries and regions, contact us for the details: Albania, Algeria, Armenia, Bahrain, Bangladesh, Belarus, Botswana, Bosnia and Herzegovina, Cameroon, Côte d’Ivoire, Croatia, Cuba, Cypress, Ecuador, Egypt, El Salvador, Georgia, Ghana, Guatemala, Honduras, Iceland, Indonesia, Iran, Jamaica, Jordan, Kazakhistan, Kenya, Kosovo, Kuwait, Latvia, Lebanon, Libya, North Macedonia, Malta, Moldova, Nepal, Nicaragua, Nigeria, Oman, Palestinian Territories, Pakistan, Panama, Paraguay, Peru, Philippines, Puerto Rico, Qatar, Rwanda, Saudi Arabia, Senegal, Singapore, Slovenia, South Korea, Tunisia, Turkey, Uganda, Ukraine, Uruguay, Uzbekistan, Venezuela, Vietnam and Yemen.

No member in your area?

Do you live in a region that is not listed here? Are you struggling to connect with other families in your country? Get in touch and we can offer advice and guidance

Your Membership stories

Find out more about the stories, challenges and plans of PWS associations around the world, all working for the same cause to provide support, services and help, and to raise awareness of PWS in their country.

PWS Malaysia

PWS Thailand

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International Community

IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.

Information for
Families

Find useful guides, research and information to help families manage PWS.

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Information for Medical Professionals

The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

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Information for
Professional Caregivers

Sharing international knowledge among professional service providers throughout the world.

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What is PWS?

Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are born with Prader-Willi syndrome and it affects all races and both sexes equally.

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Free Diagnosis

If you suspect your patient has Prader-Willi syndrome, based on the clinical signs and symptoms, but are unable to access testing in your country, then you may be able to access free testing.

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Find support in my country

We have contacts in many countries and regions around the world.

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