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Educational Outreach

Attendance at medical conferences helps us to connect with doctors who have little information about PWS, as well as to engage and learn from doctors who are already actively involved in supporting people with PWS in their countries and regions.  Hosting awareness booths at conferences enables us to share information about the services and resources we offer, including free diagnostic testing and grants to support conferences and workshops, as well as to learn about the specific challenges facing professionals around the world.

Please find below some recent examples of conferences we have attended or will be working at soon.

women at exhibition booth

ECE 2023, Istanbul, Turkey

We will be at the European Congress of Endocrinology this May. Come and find us in the Patient Experience Zone.

ASPAE 2023, Yaoundé, Cameroon

We hosted an educational booth and presented at the round table on Obesity at this important Endocrinology conference hosted by the African Society of Paediatric and Adolescent Endocrinology (ASPAE) from 9-10 February. Read our blog about our visit.

ECE 2021, Online

We hosted an educational booth and gave a presentation at the European Congress of Endocrinology in May 2021.

ESPE 2019, Vienna, Austria

We exhibited at the European Society of Paediatric Endocrinology (ESPE) Conference in Vienna, Austria, which took place in September 2019. Find out more in our blog.

ECE 2019, Lyon, France

We exhibited at the European Congress of Endocrinology in May 2019.

People standing at exhibition

IPWSO Vice-President François Besnier attended ASPAE 2023 and met with ASPAE President Suzy Sap and colleagues.

International Community

IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.

three adults and a child smiling

Information for

Find useful guides, research and information to help families manage PWS.

One man one lady at conference

Information for Medical Professionals

The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

Information for
Professional Caregivers

Sharing international knowledge among professional service providers throughout the world.

What is PWS?

Translated Guides

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