News & Events
Keep up to date with our work and news from our members. We are always happy to hear about your news and events too so do get in touch if you have something to share!
If you are a journalist writing about PWS, then check out our guide to talking about the syndrome. For media enquiries, please contact Margaret Walker, IPWSO CEO at mwalker(at)ipwso.org
News
Stories about what is new in the PWS world.
International Conference
Join us in the USA for our 2025 event.
Caregivers’ Forum
A place for professional PWS caregivers worldwide to share practice-driven knowledge, information and support.
Family Meetings
Online meetings on topics relevant to families of people with PWS.
Research and Clinical Trials Update Meetings
Updates from companies who have ongoing, planned and recently concluded clinical trials.
Summit Meetings
Online meetings where key issues of relevance to people with PWS and their families, are discussed.
Our Blog
Stories and views from around the world