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News & Events

Keep up to date with our work and news from our members. We are always happy to hear about your news and events too so do get in touch if you have something to share!

If you are a journalist writing about PWS, then check out our guide to talking about the syndrome.

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Stories about what is new in the PWS world.

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International conference

Join us in the USA for our 2025 event.

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Caregivers’ conference

Find out about our 2024 conference in Berlin.

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Our Blog

Stories and views from around the world.

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Summit meetings

Find out about upcoming events.

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Family meetings

A chance to discuss issues important to your family.

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Our previous conferences

Information about our past conferences.