News
Follow the latest news from around the world and the international PWS family.
Webinar on the endocrinology of PWS, for professionals in Africa
We are hosting a webinar with ASPAE about endocrinology and Prader-Willi syndrome in Africa: at 5pm West Africa Time on Thursday 8th September 2022. Prader-Willi syndrome (PWS) is a complex and rare neurodevelopmental condition. Studies have shown that between 1 in...
IPWSO’s General Assembly 2022
The General Assembly is the decision-making body of IPWSO, where IPWSO members can elect the Trustees, influence future plans and hear reports from the past 3 years. The General Assembly of IPWSO was held at 5pm Irish Standard Time on Sunday 10th July 2022 at the...
Could your country host IPWSO 2025?
The General Assembly of IPWSO has agreed to extend the bidding period for potential hosts to submit proposals to hold the 12th International Prader-Willi Syndrome Organisation conference in 2025. This is an exciting opportunity to bring international speakers and...
IPWSO Support for the People of Ukraine
IPWSO Support for the People of Ukraine The continuing suffering of the people of Ukraine is a cause of great sadness to IPWSO. We have watched from afar as the horror of this war unfolded and are conscious of the tremendous injustice, hardship, and anxiety that...
XI Conferencia Internacional IPWSO 2022
XI Conferencia Internacional IPWSO 2022 (*) University of Limerick - Irlanda 6 al 10 de julio Ya es tiempo que volvamos a reunirnos presencialmente como comunidad global, después de estos difíciles tiempos de pandemia en que hemos estado aislados. IPWSO 2022 ha...
Could your PWS association host the IPWSO conference in 2025?
Has your PWS Association thought about hosting an IPWSO conference? In the past these have been held in the Netherlands, Norway, Italy, USA, New Zealand, Romania, Taiwan, UK, Canada and most recently Cuba. Ireland will host in 2022, maybe you could host in 2025? The...
Could you help guide our work?
We are looking for people interested in joining the IPWSO Board from July 2022. Could you get involved and help guide and support our vital work? Trustees play a crucial role in the work of IPWSO. We are lucky to work with a fantastic group of people on our current...
Asia Pacific PWS conference – October 2021!
The PWS associations of Australia, New Zealand, Malaysia and Thailand have come together to present the 5th Asia Pacific Prader-Willi syndrome conference! The event will be hosted online from 29th to 31st October 2021. We are delighted to be involved in what promises...
PWSA USA conference goes online and open to all!
The PWSA USA's national convention is going online from 22nd to 26th June, 2021. Over the course of five days, attendees will share ideas and experiences while learning from leaders in the field of PWS. The virtual format makes it possible for more families than ever...
IPWSO calls for use of Growth Hormone treatment in adults
IPWSO argues that Growth Hormone treatment should be universally available not just to children but also to adults with PWS. Our Clinical and Scientific Advisory Board has written to the Editor of the Orphanet Journal of Rare Diseases calling for the use of Growth...
International Community
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
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