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News

Follow the latest news from around the world and the international PWS family.

Use our Media Guide for information about how to write and report about Prader-Willi syndrome.

New funding for small PWS projects 2024

We have launched a new round of funding for families and professionals to organise PWS projects in countries where they are needed most. IPWSO is offering microgrants for small projects to support the efforts of individuals and groups who are working to improve the...

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Do you want to organise a PWS event in your country?

Applications are now welcome for funding for PWS Conference and Workshops!  Thanks to the support of Friends of IPWSO (USA), the IPWSO Grants Committee is able to offer funding to individuals and groups who are interested in planning and hosting a PWS event to promote...

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ASPAE 2024 Travel Fellowships

Opportunities to attend the fifteenth African Society of Paediatric and Adolescent Endocrinology Congress on 7 & 8 March 2024, Algiers, Algeria.   In order to share knowledge about Prader-Willi syndrome (PWS) around the world, IPWSO is delighted to offer a limited...

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Can you help more families access PWS support?

Please support our Advice Line Appeal Help us be there for people with PWS in parts of the world with little support.  This month we’re raising funds to help people with PWS access our vital advice line.   Your donations will provide essential life-saving advice for...

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Meeting for Ukrainian Families

We are hosting a meeting about the key features and challenges of Prader-Willi syndrome for families from Ukraine on November 21st at 7 pm (EET, Ukraine time). The meeting will feature a presentation by Dr. Susanne Blichfeldt and will be fully translated into...

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Do you want to organise a PWS event in your country?

Applications are now welcome for funding for PWS Conference and Workshops!  Thanks to the support of Friends of IPWSO (USA), the Conference and Workshops Committee of IPWSO is able to offer funding to individuals and groups who are interested in planning and hosting a...

read more

New funding for small PWS projects 2024

We have launched a new round of funding for families and professionals to organise PWS projects in countries where they are needed most. IPWSO is offering microgrants for small projects to support the efforts of individuals and groups who are working to improve the...

read more

Supporting PWS events and projects in 2023

IPWSO is delighted to announce we have awarded grants to support PWS events and projects across 11 countries in 2023. Congratulations to all the grant recipients! These are exciting initiatives, and we look forward to sharing more news as the events and projects...

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IPWSO conference 2025

An update on plans for our 2025 conference Our members usually select our conference venue at our General Assembly, however we did not receive any bids to present at the conference last year. The General Assembly therefore agreed to reopen the process and asked for...

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International Community

IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.

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Information for
Families

Find useful guides, research and information to help families manage PWS.

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Information for Medical Professionals

The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

Information for
Professional Caregivers

Sharing international knowledge among professional service providers throughout the world.

What is PWS?

Translated Guides

Find support in my country