Sign up to our newsletter

Contact Us

Do you want to organise a PWS event in your country?

Do you want to organise a PWS event in your country?

We have launched a new round of funding for families and professionals to organise PWS workshops in countries where events are needed most. Thanks to the support of Friends of IPWSO (USA), the Conference and Workshops Committee of IPWSO is able to offer funding to...
PWS and self-determination

PWS and self-determination

Prader-Willi France held its 25th national day on 15th October 2022, gathering together more than 220 families and professionals. The theme was self determination under the title “What about my opinion?”. Two children and two adults with PWS addressed the...
New PWS resources available thanks to Global Genes

New PWS resources available thanks to Global Genes

Thanks to Global Genes for this exciting translation project! The International Prader-Willi Syndrome Organisation (IPWSO) is a recipient of the 2022 Health Equity in RARE Patient Impact Grant sponsored by Global Genes. Thanks to this award, IPWSO’s project...
IPWSO’s General Assembly 2022

IPWSO’s General Assembly 2022

The General Assembly is the decision-making body of IPWSO, where IPWSO members can elect the Trustees, influence future plans and hear reports from the past 3 years. The General Assembly of IPWSO was held at 5pm Irish Standard Time on Sunday 10th July 2022 at the...
Could your country host IPWSO 2025?

Could your country host IPWSO 2025?

The General Assembly of IPWSO has agreed to extend the bidding period for potential hosts to submit proposals to hold the 12th International Prader-Willi Syndrome Organisation conference in 2025. This is an exciting opportunity to bring international speakers and...