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Addressing UHC through Rare Diseases

Addressing UHC through Rare Diseases

We attended the webinar “Addressing UHC through Rare Diseases” co-organised by Rare Diseases International and EURORDIS on 11th December 2020… The discussion included a lively exchange on the challenges and potential for Universal Health Coverage to...

We are recruiting!

The International Prader-Willi Syndrome Organisation is looking for a talented and motivated UK-based Project Manager to support its virtual training and meetings including the coordination and facilitation of a series of Project ECHO® telementoring initiatives...

Announcing IPWSO Project ECHO® Programmes – 2020/2021

IPWSO’s mission in collaborating with the Project ECHO® initiative is to unite the Prader-Willi syndrome (PWS) global community.  We want to move knowledge and to reach underserved populations. Collectively, we believe, we can find solutions to the challenges of...

RDI and COVID-19

Rare Diseases International (RDI) have today published their statement on COVID-19 and the impact on the lives of people with rare disorders and the response that is needed from Governments. IPWSO, as a member of RDI, recognises that people with rare disorders,...

Prader-Willi research

Our Clinical and Scientific Advisory Board has published a collated list of all PWS research papers published from July to September 2020. Download...

Prader-Willi research

Our Clinical and Scientific Advisory Board has published a collated list of all PWS research papers published from April to June 2020. Download...