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Past ECHO® Programmes

Information on past IPWSO ECHO® Programmes is available here. Video presentations from these sessions are also linked.

Our most recent ECHO® programme was the IPWSO Mental Health ECHO® 2023, which concluded in September.

About IPWSO Leadership ECHO®

April 2020-August 2022

The Leadership ECHO® programme explored how we can make changes in our respective countries and influence governments so that the necessary services and supports are put in place for the benefits of people with PWS.

The goal of the IPWSO Leadership ECHO programme was to bring together people who are active in existing associations and others who are starting on the journey to establish groups or associations within their country. We believe that strong national PWS bodies can play an important role in collectively working to solve problems and can help to address disparities in services and supports, for the benefit of people with PWS, their families and carers.

We are grateful to Pfizer for support of this programme.

About IPWSO Health ECHO®

February-December 2021

People with PWS have complex and changing physical and mental health needs over their lifetime requiring the skills of various health disciplines and a multi-disciplinary approach to treatment. The IPWSO Health ECHO was open to a wide range of health and allied professionals who work with people with PWS.

The goal of the IPWSO Health ECHO was to assist health professionals who work with people with PWS to deepen their understanding of the syndrome. Sessions will include short and focused presentations, delivered by international experts, as well as case-based learning opportunities.

We are grateful to Pfizer for support of this programme.

About IPWSO SPW Latino América ECHO®

March-July 2021

This programme was delivered in Spanish and managed by RedLASPW, the Latin American Network of Prader-Willi Syndrome, which is a network comprising professionals from healthcare, education, research and other related fields from across Latin America and Spanish speaking countries. 

Course objectives were to train health and rehabilitation professionals from Spanish-speaking countries in the diagnosis and comprehensive care of people with Prader-Willi Syndrome; Promote a multidisciplinary work network among professionals from Spanish-speaking countries and; Become a reference professional for the care of people with Prader-Willi Syndrome in each participating country.

We are grateful to Pfizer for support of this programme.

About IPWSO Caregivers' ECHO®

May 2021-May 2022

This programme was aimed at Caregivers and Providers who are in contact with people with PWS in an all-day setting. Parents were also welcome to join. 

The goal of the IPWSO Caregivers’ ECHO was to learn together, examine and improve methods, and develop solutions for challenges than can arise when working with people with PWS. Sessions included short and focused presentations delivered by international experts, as well as learning opportunities based on challenging scenarios presented by participants.

We are grateful to Friends of IPWSO for support of this programme.

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International Community

IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.

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Information for

Find useful guides, research and information to help families manage PWS.

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The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

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Sharing international knowledge among professional service providers throughout the world.

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