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Friends of IPWSO (USA)

Friends of IPWSO (USA) was founded by a group of scientists and parents who recognised that many people who have Prader-Willi syndrome around the world do not have access to the resources and information needed to live successful lives.

About Us

We support IPWSO’s work through funding conferences, scholarships, translations, publications, and other needs that will improve the lives of those who have PWS and inform those who care for them whether family or professionals.

two females at conference

To make a donation to Friends of IPWSO 

Gifts to Friends of IPWSO qualify for an income tax deduction to those who pay United States taxes (US EIN 82-2546968). Send a donation to the address below or visit the link to their website

Friends of IPWSO
6400 Craig Drive
Eden Prairie 
MN 55436

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International Community

IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.

three adults and a child smiling

Information for

Find useful guides, research and information to help families manage PWS.

One man one lady at conference

Information for Medical Professionals

The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

Information for
Professional Caregivers

Sharing international knowledge among professional service providers throughout the world.

What is PWS?

Translated Guides

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