Sign up to our newsletter

Contact Us

  1. Home
  2.  » 
  3. Membership
  4.  » IPWSO Delegates

IPWSO Delegates

Each country’s registered PWS Association appoints Parent and Professional Delegates to be their representatives. When applicable, a Caregiver Delegate is also appointed. Up to four delegates can be selected to represent their country at any IPWSO conference, meeting, or function.

What is the role of IPWSO delegates?

4 women in a line smiling at the camera

Parent Delegates are the point of contact that IPWSO uses when distributing information, sending emails or requests for action. It is the Parent Delegate’s responsibility to action requests from IPWSO, making sure these reach their country’s PWS Association. IPWSO does not subsidise or pay for any travel, but if circumstances allow for a travel grant, any Delegate is able to apply. (Grants are well advertised beforehand.)

two people sat on red seats talking

Professional Delegates are the point of contact that IPWSO – and IPWSO’s Clinical and Scientific Advisory Board – uses when distributing scientific information, or requesting help or advice for a patient in that country, or referring contacts. Professional Delegates do not have voting rights, but may hold their country’s Proxy vote and may attend General Assemblies.  Professional Delegates are appointed by their country’s PWS Association.

two men in blue shirts sitting at a microphone round a table

Caregiver Delegates are the point of contact that IPWSO’s Professional Provider Caregiver Board uses to distribute information about residential support. Caregiver Delegates are appointed by their country’s PWS Association.  They do not have the right to vote, but may carry their country’s Proxy vote and attend General Assemblies.

Parent delegates to IPWSO are appointed by their country’s PWS Association to represent them especially at IPWSO’s General Assemblies, held every three years, and to vote on that country’s behalf. Any voting required must be fully approved by that country beforehand and agreed upon in consultation with the Professional Delegate. It is expected that one parent delegate will be present at the General Assembly, or that the country in question will have sent a Proxy vote beforehand.

No member in your country?

Do you live in a country that is not listed here? Are you struggling to connect with other families in your country? Get in touch and we can offer advice and guidance

< Back to Membership

International Community

IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.

three adults and a child smiling

Information for

Find useful guides, research and information to help families manage PWS.

One man one lady at conference

Information for Medical Professionals

The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

Information for
Professional Caregivers

Sharing international knowledge among professional service providers throughout the world.

What is PWS?

Translated Guides

Find support in my country