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Family Meetings

The Famcare Board of IPWSO presents online information sessions via ZOOM on topics relevant to families of people with PWS. As a community, we invite discussion, offer hope and support, and seek to empower families to manage challenges.

    Managing challenging behaviour in PWS

    Saturday 22 April, 9am AND 5pm London, UK time

      • “Listening up” – what a PWS behavioural challenge could be
      • Preventing challenging family life

    To accommodate participants from around the world this meeting will be held at 2 times. Participants need only attend 1 of the 2 meetings, though you are welcome to attend both if your time zone allows. Meetings are 90 minutes.

    Although not all people with PWS will experience challenging behaviours, they are one of the most commonly discussed issues in PWS. While some challenging behaviours may be minor, others may be more serious including meltdowns or violence.

    At this meeting we’ll discuss what behavioural challenges look like, as well as strategies for managing anxiety, and the prevention or de-escalation of challenging behaviours.

    The meetings will be held at 9am and 5pm London, UK time and will include presentations from both professionals and parents, followed by Questions & Answers, and discussion.

    View the 9am agenda here.

    View the 5pm agenda here.

    Due to the broad aspect of this topic we plan to cover challenging behaviours in early childhood, and challenging behaviours that arise in older children and adults separately, by hearing briefly from 2 professionals and 2 parents in each meeting.

    The meeting is directed at parents and families, but anyone with an interest in PWS is welcome.

    IPWSO strives to make collaboration in our community as accessible as possible. If you would like to take part but feel you may experience difficulty with language or any other aspect of communicating with the group, we encourage the support of interpreters, family members or caregivers. Please let us know if you would like to plan any special arrangements and we’ll be delighted to support this.

    Professionals who support the wellbeing and mental health of people with PWS in their work may also want to join the IPWSO Mental Health ECHO® Programme.

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