Family Meetings
The Famcare Board of IPWSO presents online information sessions via ZOOM on topics relevant to families of people with PWS. As a community, we invite discussion, offer hope and support, and seek to empower families to manage challenges.
Having a brother or sister with PWS
Saturday, 25 November, 2023, 9am and 5pm London, UK time
To accommodate participants from around the world this meeting will be held at 2 times. Participants need only attend 1 of the 2 meetings, though you are welcome to attend both if your time zone allows. Meetings are 90 minutes.
At this meeting we’ll focus on the siblings of people with PWS, the unique challenges they face, the rewards, and how best to support siblings within the family.
The meetings will be held at 9am and 5pm London, UK time and will include presentations from both professionals and siblings, followed by Questions & Answers, and discussion.
Further details and an agenda will follow soon.
The meeting is directed at parents and families, but anyone with an interest in PWS is welcome. The meeting is free to attend, but registration is required.
IPWSO strives to make collaboration in our community as accessible as possible. If you would like to take part but feel you may experience difficulty with language or any other aspect of communicating with the group, we encourage the support of interpreters, family members or caregivers. Please let us know if you would like to plan any special arrangements and we’ll be delighted to support this.
Previous Family Meetings
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International Community
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for
Families
Find useful guides, research and information to help families manage PWS.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
Information for
Professional Caregivers
Sharing international knowledge among professional service providers throughout the world.