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Family Meetings

The Famcare Board of IPWSO presents online information sessions via ZOOM on topics relevant to families of people with PWS. As a community, we invite discussion, offer hope and support, and seek to empower families to manage challenges.

    Having a brother or sister with PWS

    This meeting took place on November 25, 2023. We will share the details of the next meeting here as soon as it is announced.

    This meeting focused on the siblings of people with PWS, the unique challenges they face, the rewards, and how best to support siblings within the family. 

    The presentations from the meeting are shared below. 

    Previous Family Meetings

    Managing challenging behaviour in PWS

    Read more on Siblings

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    International Community

    IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.

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    Find useful guides, research and information to help families manage PWS.

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    The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

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