Family Meetings

Meaningful day activities for adults with PWS can include many options based on individual interests, abilities, and goals. These include volunteer or paid work placements, day programmes, creative pursuits and recreational activities. Planned, purposeful tasks and social interaction helps individuals build confidence, well‑being, community connections, and a sense of achievement.

This meeting will explore what meaningful day activities can look like in real life for adults with Prader‑Willi syndrome, and how families, carers and professionals can support individuals to find options that truly work for them. We will look at a range of approaches, from structured programmes to more flexible, personalised activities, recognising that there is no one‑size‑fits‑all solution.

Speakers will share practical examples, lived experiences and ideas that have helped adults with PWS stay engaged, motivated and valued within their communities. There will be a focus on choice, routine, support needs and the role of social connection in creating fulfilling days.

Time will also be set aside for questions and shared discussion, giving attendees the chance to learn from one another and reflect on what might be possible in their own local or family context.

You’re not alone. Join us to learn, ask questions, and find community.

The meeting is directed at parents and families, but anyone with an interest in PWS is welcome.