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Family Meetings

Progressing from childhood to adulthood

Saturday, 23 November

9am AND 5pm London, UK time

To accommodate participants from around the world this meeting will be held at 2 times. Participants need only attend 1 of the 2 meetings, though you are welcome to attend both if your time zone allows. Meetings are 90 minutes.

Periods of transition can be some of the most stressful and difficult times for people with PWS. Planning for change is important to help reduce possible reactive, fearful and oppositional behaviour that can develop as a result of change. Supporting someone with PWS through major life changes takes time, patience and encouragement as well as guidance and direction.

At this meeting we’ll discuss challenges within the family, school, work, group homes, social settings and more. Speakers and participants are invited to share transition planning strategies, and personal experiences of transition challenges.

The meetings will be held at 9am and 5pm London, UK time and will include presentations from both professionals and parents, followed by Q&A and discussion. Topics include:

  • Human rights / self-determination
  • Friends, relationships and sexuality
  • Family testimonials
  • Care in the family / care in group homes

The meeting is directed at parents and families, but anyone with an interest in PWS is welcome. There is no cost, but registration is required.

IPWSO strives to make collaboration in our community as accessible as possible. If you would like to take part but feel you may experience difficulty with language or any other aspect of communicating with the group, we encourage the support of interpreters, family members or caregivers. Please let us know if you would like to plan any special arrangements and we’ll be delighted to support this.

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