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Our People


Honorary President

Board of Trustees 



Boards and Committees reporting to the Board of Trustees

Clinical and Scientific Advisory Board

Professional Providers and Caregivers Board

Famcare Board

Finance Committee

    • Chair: Craig Moore

Fundraising Committee

    • Chair: Marguerite Hughes

Investment Commitee

    • Chair: Scott Arant

Nominations Committee

    • Chair: Colin Pearson

Committees reporting to the Chief Executive Officer

Grants Committee

    • Chair: Lynn Garrick

International Conference Committee

    • Chair: To be confirmed

Online Events Committee

    • Chair: Karin Clarke

People with PWS Committee

    • Chair: Svetlana Labun

Publication and Communication Committee

    • Chair: François Besnier

Research and Clinical Trials Committee

    • Chair: Tony Holland
IPWSO Board of Trustees
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International Community

IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.

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Information for

Find useful guides, research and information to help families manage PWS.

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Information for Medical Professionals

The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

Information for
Professional Caregivers

Sharing international knowledge among professional service providers throughout the world.

What is PWS?

Translated Guides

Find support in my country