Caregivers’ Conference 2024
6th International Prader-Willi Syndrome Caregivers’ Conference
This conference took place in Berlin, Germany, 21-23 May 2024
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Our thanks to everyone who attended the conference! Conference Presentations, Posters and Summaries of the Workshops can still be viewed and are linked from this page.
For more content from the conference, be sure to view the playlist of videos from the conference on IPWSO’s YouTube channel.
The Professional Providers and Caregivers Board of IPWSO is pleased to announce the 6th International Caregivers’ Conference in Berlin, Germany, from 21-23 May 2024. This event is in keeping with the spirit of the first caregivers’ conference organized by Pam Eisen in Herne in 2008.
Professional providers and caregivers are integral to the health and well-being of those living with Prader-Willi syndrome. It remains critical that caregivers have access to the latest information and can learn in a collaborative setting about topics essential to care provision.
This conference is designed for anyone with daily or occasional involvement as a professional caregiver of people with Prader-Willi syndrome. If you live in a country which doesn’t currently have care services for people with PWS, anyone in a supportive role for their national PWS association is also welcome.
This event will take place over three days. It will offer a wide variety of lectures and workshops in a collaborative atmosphere where professional caregivers worldwide can exchange practice-driven knowledge and actively contribute their own experiences to enhance the care they provide and develop new methods of support in an ever-changing world.
The conference will cover topics such as research, the future of PWS support, relationships, technology, balancing individual rights with the duty of care, diagnostic instruments in behavior management, the role of therapies, autonomy, ageing and more.
We hope you will join us for this conference dedicated to professional providers and caregivers, and we look forward to being with you all in Berlin.
Scholarships
Depending on availability of funds, IPWSO offers scholarships to attend our conferences. Contact us to keep up to date with conferences, workshops, meetings, and scholarship grants.
Future conferences
Has your Association thought about hosting an IPWSO conference? In the past these have been held in the Netherlands, Norway, Italy, USA, New Zealand, Romania, Taiwan, UK, Canada, Cuba and most recently Ireland. In 2025 we are delighted to be returning to the USA.
If your association is interested in hosting a future conference do get in touch.
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International Community
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for
Families
Find useful guides, research and information to help families manage PWS.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
Information for
Professional Caregivers
Sharing international knowledge among professional service providers throughout the world.
What is PWS?
Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are born with Prader-Willi syndrome and it affects all races and both sexes equally.
Free Diagnosis
If you suspect your patient has Prader-Willi syndrome, based on the clinical signs and symptoms, but are unable to access testing in your country, then you may be able to access free testing.
Find support in my country
We have contacts in many countries and regions around the world.