IPWSO Project ECHO® Programme
Project ECHO® is a key enabler to IPWSO’s strategy to grow and strengthen the PWS community. Through online learning and knowledge sharing we work to reduce global inequality in the availability of treatments, services and information for people with PWS and their families.
This IPWSO project is supported by
IPWSO’s mission is to unite the Prader-Willi syndrome (PWS) community globally. We want to build a knowledge network and to reach underserved populations so that everyone, everywhere, knows about the best social care and medical treatments available to people with PWS.
Collectively, we believe, we can find solutions to the challenges of the syndrome and together we can help to share best practice and build centres of excellence in PWS across the world.
In collaboration with the University of New Mexico’s Project ECHO® initiative, we are pleased to offer free online tele-mentoring programmes designed to support health and allied professionals, parents, caregivers, families, PWS Associations and people who wish to form groups to raise awareness and advocate for the needs of people with PWS.
Our educational programmes currently include a Leadership, a Health, an SWP Latino Américan and a Caregivers* ECHO. Each is aimed at a different group of participants; click the links to find out which ECHO is right for you.
*With the exception of the Caregivers’ ECHO, our most recent initiative, these programmes have received support under a medical education grant from Pfizer Inc. For further information see our Acknowledgements section below.
IPWSO is grateful to Pfizer Inc., for supporting the ECHO® programmes by way of an Independent Medical Education Grant.
IPWSO is solely responsible for the content of the programmes and the selection of presenters, authors and moderators and/or faculty (“Faculty”). Pfizer Inc., does not direct or influence the content of the programmes and does not participate in the selection of the “Faculty”.
Presenters are required to complete a Meaningful Disclosure of Supports at the outset of presentations.
IPWSO acknowledges that the International Academy of CPD Accreditation Consensus Statement (https://academy4cpd-accreditation.org) is a benchmark for independence in continuing medical education (CME) funding and will adhere to the IACPDA Consensus Statement with respect to the ECHO® programmes and the funding even if the programmes are not accredited or certified CME Programmes.
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IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.