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Sign up to our newsletter

Find out the latest news from IPWSO by signing up to our regular email newsletter. The newsletter contains a mixture of stories about our projects, the work of our association members, stories about individuals with PWS and other news from around the world including research, new developments and conferences. We are also always happy to hear from you about stories you would like to raise about PWS in your part of the world, your challenges, achievements and questions. Sign up today and get involved in the international PWS family!

The International Prader-Willi Syndrome Organisation will use the information you provide on this form to be in touch with you and to provide updates and marketing. Please let us know all the ways you would like to hear from us:

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International Community

IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.

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Information for

Find useful guides, research and information to help families manage PWS.

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Information for Medical Professionals

The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

Information for
Professional Caregivers

Sharing international knowledge among professional service providers throughout the world.

What is PWS?

Translated Guides

Find support in my country