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Ask a Professional

Your question(s) will be sent to our specialists on the Clinical and Scientific Advisory Board (CSAB).  We will send you an answer back as soon as possible, but please be patient since we receive many questions from countries around the world. 

Please be aware that when you contact us about a specific problem concerning someone with PWS, our specialists have not seen this person professionally in clinic. Therefore, IPWSO can only give advice in general terms based on our knowledge about PWS.

We do not have the authority to force anyone in your country to give any specific treatment(s) or support, but we can give our professional opinion about what we consider the best treatment strategies. Our goal is to support you as best as we can. We are looking forward to receiving your information and questions.

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International Community

IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.

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Information for

Find useful guides, research and information to help families manage PWS.

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Information for Medical Professionals

The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

Information for
Professional Caregivers

Sharing international knowledge among professional service providers throughout the world.

What is PWS?

Translated Guides

Find support in my country