Since 1991 IPWSO has supported national PWS associations, as well as people with PWS, their families and the professionals who work with them. Our vision is a world where people with PWS and their families receive the services and support they need to fulfil their potential and achieve their goals. We are working to achieve this goal by uniting the global PWS community to collectively find solutions to the challenges of the syndrome and to support and advocate for people with PWS and their families, PWS associations, and professionals who work with people with PWS.
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
What is PWS?
Find support in my country
How we can help
IPWSO is committed to supporting all people with Prader-Willi syndrome and their families, whatever their needs, and wherever they live. Whether you are looking for answers to your questions, information about diagnosis or support to build expertise in your own country, you are in the right place.
Find out the latest news from IPWSO and stories of interest from around the world. We are always interested to hear your news too, so do get in touch if you want to share a blog post or news of an event or project in your country.
Take our IPWSO survey on how COVID-19 infection affects people with PWS.
The survey is to be completed by the family or carer of a person with PWS who has had COVID-19 infection. Early results can be found here.
IPWSO has had many articles translated. Most of these relate to family care of a person with PWS and some are medical articles.
You are welcome to download and distribute these articles, but please quote IPWSO as the source.
IPWSO Conference 2022
Join us at the 11th International Prader-Willi Syndrome Organisation Conference!
6-10 July 2022 at the University of Limerick, Ireland