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IPWSO conference 2022

Thank you to all our speakers and delegates for a fantastic conference! The programme booklets are still available on our website and if you want to follow up on anything, do contact us.

IPWSO Support for the People of Ukraine

We stand in solidarity with the people of Ukraine.  We have been heartened by the many communications we have received from our member associations all asking how they can support people with PWS and their families from Ukraine.  As a global PWS community, we are ready and eager to help

Using Project ECHO® to raise awareness of PWS

Project ECHO® is a key enabler to IPWSO’s strategy to grow and strengthen the PWS community. Through online learning and knowledge sharing we work to reduce global inequality in the availability of treatments, services and information for people with PWS and their families.

Find out more and view our free resources.

Lady and small child


Since 1991 IPWSO has supported national PWS associations, as well as people with PWS, their families and the professionals who work with them. Our vision is a world where people with PWS and their families receive the services and support they need to fulfil their potential and achieve their goals. We are working to achieve this goal by uniting the global PWS community to collectively find solutions to the challenges of the syndrome and to support and advocate for people with PWS and their families, PWS associations, and professionals who work with people with PWS.

two adults and a child

Information for

Find useful guides, research and information to help families manage PWS.

One man one lady at conference

Information for
Medical Professionals

The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

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Information for
Professional Caregivers

Sharing international knowledge among professional service providers throughout the world.

What is PWS?

Free Diagnosis

Find support in my country

three ladies at an IPWSO conference

How we can help

IPWSO is committed to supporting all people with Prader-Willi syndrome and their families, whatever their needs, and wherever they live. Whether you are looking for answers to your questions, information about diagnosis or support to build expertise in your own country, you are in the right place.

three ladies at an IPWSO conference

Latest News

Find out the latest news from IPWSO and stories of interest from around the world. We are always interested to hear your news too, so do get in touch if you want to share a blog post or news of an event or project in your country.

How you can help us

Much of our work is carried out by volunteers and we rely on the generosity of our supporters to fund what we do. Whether you could donate your time, share your story or make a donation towards our work, we would love to hear from you.

IPWSO Conference 2022

Join us at the 11th International Prader-Willi Syndrome Organisation Conference!
6-10 July 2022 at the University of Limerick, Ireland

Translated Guides

IPWSO has had many articles translated. Most of these relate to family care of a person with PWS and some are medical articles. You are welcome to download and distribute these articles, but please quote IPWSO as the source.