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Join our family meeting

We are holding a Zoom meeting for families to discuss managing challenging behaviour in PWS. The meeting is happening on Sunday 22 April and there are two sessions to choose from depending on your time zone.

Our conference in 2025

We are delighted to announce that the 2025 conference will be held in the USA in partnership with PWSA | USA. More details about the venue will follow later in the year.

Video guides about PWS

We have released a set of videos looking at some of the key issues affecting people with PWS and their families. These include topics such as Growth Hormone, Obesity and Sleep Disorders.

Thank you to our expert presenters!

Boy with glasses and hat
Boy with glasses and hat


Since 1991 IPWSO has supported national PWS associations, as well as people with PWS, their families and the professionals who work with them. Our vision is a world where people with PWS and their families receive the services and support they need to fulfil their potential and achieve their goals. We are working to achieve this goal by uniting the global PWS community to collectively find solutions to the challenges of the syndrome and to support and advocate for people with PWS and their families, PWS associations, and professionals who work with people with PWS.

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Information for

Find useful guides, research and information to help families manage PWS.

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Information for
Medical Professionals

The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

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Information for
Professional Caregivers

Sharing international knowledge among professional service providers throughout the world.

What is PWS?

Free Diagnosis

Find support in my country

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How we can help

IPWSO is committed to supporting all people with Prader-Willi syndrome and their families, whatever their needs, and wherever they live. Whether you are looking for answers to your questions, information about diagnosis or support to build expertise in your own country, you are in the right place.

three ladies at an IPWSO conference

Latest News

Find out the latest news from IPWSO and stories of interest from around the world. We are always interested to hear your news too, so do get in touch if you want to share a blog post or news of an event or project in your country.

How you can help us

Much of our work is carried out by volunteers and we rely on the generosity of our supporters to fund what we do. Whether you could donate your time, share your story or make a donation towards our work, we would love to hear from you.

Video resources about Prader-Willi syndrome

Learn more about the syndrome with our useful videos including presentations by international experts.

Translated Guides

IPWSO has had many articles translated. Most of these relate to family care of a person with PWS and some are medical articles. You are welcome to download and distribute these articles, but please quote IPWSO as the source.