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Guides for Doctors: Consensus Documents

These guides have been developed by IPWSO’s Clinical and Scientific Advisory Board to provide an overview of the most common and serious medical issues affecting people with PWS and to provide a structure for the medical evaluation of their needs. The guides have been written for use by medical professionals and allied health staff and will also be of interest to families who may wish to take them to medical appointments. The guides are available in four parts addressing four different age groups. We would encourage you to share these with friends and colleagues.

Please visit our translations page to download professionally translated versions in Arabic, Mandarin, Spanish and Turkish.

Adults with Prader-Willi syndrome
Adolescents with Prader-Willi syndrome
Children (age 3-12) with Prader-Willi syndrome
Infants (age 0-3) with Prader-Willi syndrome

International Community

IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.

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Information for

Find useful guides, research and information to help families manage PWS.

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Information for Medical Professionals

The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

Information for
Professional Caregivers

Sharing international knowledge among professional service providers throughout the world.

What is PWS?

Translated Guides

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