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There are many ways to get involved with IPWSO’s work from joining our Trustees or Boards to helping with a project or fundraising. 

We also have opportunities to volunteer at our conferences and events

If you would like to use your skills to support us please get in touch! Email office@ipwso.org.

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International Community

IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.

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Information for

Find useful guides, research and information to help families manage PWS.

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Information for Medical Professionals

The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

Information for
Professional Caregivers

Sharing international knowledge among professional service providers throughout the world.

What is PWS?

Translated Guides

Find support in my country