by Agnes Hoctor | Jan 16, 2023 | News
We have launched a new round of funding for families and professionals to organise PWS projects in countries where they are needed most. IPWSO is offering microgrants for small projects to support the efforts of individuals and groups who are working to improve the...
by Agnes Hoctor | Nov 23, 2022 | News
We have launched a new round of funding for families and professionals to organise PWS workshops in countries where events are needed most. Thanks to the support of Friends of IPWSO (USA), the Conference and Workshops Committee of IPWSO is able to offer funding to...
by Agnes Hoctor | Nov 4, 2022 | News
Prader-Willi France held its 25th national day on 15th October 2022, gathering together more than 220 families and professionals. The theme was self determination under the title “What about my opinion?”. Two children and two adults with PWS addressed the...
by Agnes Hoctor | Oct 13, 2022 | News
Thanks to Global Genes for this exciting translation project! The International Prader-Willi Syndrome Organisation (IPWSO) is a recipient of the 2022 Health Equity in RARE Patient Impact Grant sponsored by Global Genes. Thanks to this award, IPWSO’s project...
by Agnes Hoctor | Aug 25, 2022 | News
We are hosting a webinar with ASPAE about endocrinology and Prader-Willi syndrome in Africa: at 5pm West Africa Time on Thursday 8th September 2022. Prader-Willi syndrome (PWS) is a complex and rare neurodevelopmental condition. Studies have shown that between 1 in...
by Agnes Hoctor | Aug 8, 2022 | News
The General Assembly is the decision-making body of IPWSO, where IPWSO members can elect the Trustees, influence future plans and hear reports from the past 3 years. The General Assembly of IPWSO was held at 5pm Irish Standard Time on Sunday 10th July 2022 at the...
