by Farisha Colbourne | Jan 28, 2026 | News
We wish to share that Margaret Walker, our current CEO, will be stepping down from her role as Chief Executive Officer at IPWSO. The Trustees would like to thank Margaret for her contribution over the past year and express their sincere gratitude for the commitment,...
by Shelly Cordner | Jan 12, 2026 | News
In 2025, IPWSO LATAM surveyed PWS associations across Latin America to understand their progress, challenges, and needs. The results show a region full of potential – but still facing significant gaps. Severe under diagnosisAn estimated 36,000 people live with...
by Shelly Cordner | Nov 26, 2025 | News
A new commentary published in Diabetes, Obesity and Metabolism shares practical recommendations for gathering real world evidence on the use of GLP-1 medications in people with Prader-Willi syndrome. The article summarises a workshop held as part of the United in...
by Shelly Cordner | May 15, 2025 | News
James (Jim) Gardner November 18, 1940 — April 26, 2025 A Champion of the Prader-Willi syndrome community We in IPWSO were sad to hear of the recent passing of Jim Gardner from Minnesota, USA, a much-valued and longstanding member of the IPWSO community, and husband...
by Shelly Cordner | Mar 31, 2025 | News
First treatment for hyperphagia in Prader-Willi syndrome brings hope to individuals with PWS and their families around the world. The United States Food and Drug Administration (US FDA) has approved VYKAT™ XR, a significant milestone as the first approved treatment...
by Nora McNairney | Jan 6, 2025 | News
We are delighted to welcome Margaret Walker as she joins us today as our new CEO. Margaret is a committed association management and public affairs professional with over 20 years’ experience in the field. She has worked with scientific, medical, family and patient...
