by Agnes Hoctor | Mar 3, 2021 | News
The PWSA USA’s national convention is going online from 22nd to 26th June, 2021. Over the course of five days, attendees will share ideas and experiences while learning from leaders in the field of PWS. The virtual format makes it possible for more families than...
by Agnes Hoctor | Feb 15, 2021 | News
IPWSO argues that Growth Hormone treatment should be universally available not just to children but also to adults with PWS. Our Clinical and Scientific Advisory Board has written to the Editor of the Orphanet Journal of Rare Diseases calling for the use of Growth...
by Agnes Hoctor | Feb 11, 2021 | News
A study published in the New England Journal of Medicine has shown exciting results from trials of a drug called semaglutide on people with severe obesity. The trial showed that people lost an average of 15kg when receiving semaglutide compared with only 2.6kg in...
by Agnes Hoctor | Jan 10, 2021 | News
Our Clinical and Scientific Advisory Board has published a collated list of all PWS research papers published from October to December 2020. Download...
by Agnes Hoctor | Dec 16, 2020 | News
We attended the webinar “Addressing UHC through Rare Diseases” co-organised by Rare Diseases International and EURORDIS on 11th December 2020… The discussion included a lively exchange on the challenges and potential for Universal Health Coverage to...
by Agnes Hoctor | Nov 5, 2020 | News
The International Prader-Willi Syndrome Organisation is looking for a talented and motivated UK-based Project Manager to support its virtual training and meetings including the coordination and facilitation of a series of Project ECHO® telementoring initiatives...
