We are hosting a webinar with ASPAE about endocrinology and Prader-Willi syndrome in Africa: at 5pm West Africa Time on Thursday 8th September 2022.
Prader-Willi syndrome (PWS) is a complex and rare neurodevelopmental condition. Studies have shown that between 1 in every 15,000 and 1 in every 25,000 people are born with PWS and it affects all races and sexes equally.
Endocrinologists play a key role in the care and treatment of people with PWS as there are many challenges relating to hormone deficiencies caused by the syndrome.
Despite the expected birth-rate of babies with PWS, the picture of how many people are living with PWS in Africa is unclear, as well as there being little information about what sort of support they are receiving. IPWSO knows about some strong networks in northern Africa and South Africa but there are many gaps.
The African Society of Paediatric and Adolescent Endocrinology (ASPAE) and the International Prader-Willi Syndrome Organisation (IPWSO) invite you to a webinar to learn more about the signs and symptoms of the syndrome, diagnosis and management.
The Webinar will be held at 5pm WAT on Thursday 8th September 2022 (the meeting will last 60 mins). To register please use this link: https://us06web.zoom.us/meeting/register/tZUocu6orTMtHt3aB1tJ9rVdqYBUmkJdFPZP
If you have any questions in advance or following the event, do contact Agnes Hoctor at IPWSO on firstname.lastname@example.org.