by IPWSO | Dec 21, 2023 | Blog
Karen tells us about her daughter Andrea, the challenges of PWS that the family have faced together, and how Andrea is doing now as she reaches the age of 40. This is my daughter, Andrea Agnew and on December 14th we celebrated her 40th birthday. She was born with...
by IPWSO | Dec 13, 2023 | News
We are looking for a Fundraising and Communications Manager to join our team. Remote working (must be UK based) £31,000 per annum pro rata (£16,534) Part-time (20 hours per week) Contract (12 months) Closing date is 12 January 2024 at 23:30 (UK time) We’re looking for...
by IPWSO | Dec 8, 2023 | Blog
IPWSO President Tony Holland talks about the role he has held since 2016 and encourages nominations for his successor in 2025. IPWSO works on three yearly cycles. The international conference and the IPWSO general assembly happens every three years and the President...
by IPWSO | Nov 15, 2023 | News
Please support our Advice Line Appeal Help us be there for people with PWS in parts of the world with little support. This month we’re raising funds to help people with PWS access our vital advice line. Your donations will provide essential life-saving advice for...
by IPWSO | Oct 31, 2023 | News
We are hosting a meeting about the key features and challenges of Prader-Willi syndrome for families from Ukraine on November 21st at 7 pm (EET, Ukraine time). The meeting will feature a presentation by Dr. Susanne Blichfeldt and will be fully translated into...