by Agnes Hoctor | Nov 23, 2022 | News
We have launched a new round of funding for families and professionals to organise PWS workshops in countries where events are needed most. Thanks to the support of Friends of IPWSO (USA), the Conference and Workshops Committee of IPWSO is able to offer funding to...
by Agnes Hoctor | Nov 22, 2022 | Blog
We have a new guide from our Famcare Board which looks at how to support a person with PWS to manage their temperature. Some time ago our advice line was contacted by a person with PWS who asked how hot their bath should be. This was a good question. People with PWS...
by Agnes Hoctor | Nov 4, 2022 | News
Prader-Willi France held its 25th national day on 15th October 2022, gathering together more than 220 families and professionals. The theme was self determination under the title “What about my opinion?”. Two children and two adults with PWS addressed the...
by Agnes Hoctor | Oct 20, 2022 | Blog
A Mother’s Experience: a report on the social and psychological experiences of mothers raising children with Prader-Willi syndrome At IPWSO, we engage with families from all backgrounds and cultures to provide support for people with Prader-Willi syndrome globally. It...
by Agnes Hoctor | Oct 17, 2022 | Blog
Thanks to Global Genes we have been able to provide some new translations to benefit the Turkish-speaking PWS community. The International Prader-Willi Syndrome Organisation (IPWSO) is a recipient of the 2022 Health Equity in RARE Patient Impact Grant sponsored by...
