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Flourishing at 40

Flourishing at 40

Karen tells us about her daughter Andrea, the challenges of PWS that the family have faced together, and how Andrea is doing now as she reaches the age of 40. This is my daughter, Andrea Agnew and on December 14th we celebrated her 40th birthday. She was born with...
Nominations for the next IPWSO president

Nominations for the next IPWSO president

IPWSO President Tony Holland talks about the role he has held since 2016 and encourages nominations for his successor in 2025. IPWSO works on three yearly cycles. The international conference and the IPWSO general assembly happens every three years and the President...
Can you help more families access PWS support?

Can you help more families access PWS support?

Please support our Advice Line Appeal Help us be there for people with PWS in parts of the world with little support.  This month we’re raising funds to help people with PWS access our vital advice line.   Your donations will provide essential life-saving advice for...
Meeting for Ukrainian Families

Meeting for Ukrainian Families

We are hosting a meeting about the key features and challenges of Prader-Willi syndrome for families from Ukraine on November 21st at 7 pm (EET, Ukraine time). The meeting will feature a presentation by Dr. Susanne Blichfeldt and will be fully translated into...