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Attending the PWSA | USA National Convention

Attending the PWSA | USA National Convention

IPWSO President Tony Holland recently attended and spoke at the PWSA | USA National Convention in Florida, USA: The PWSA | USA National Conventions are always special occasions, and I was delighted to be able to participate in their 2023 event. PWSA | USA was one of...

Supporting PWS events and projects in 2023

IPWSO is delighted to announce we have awarded grants to support PWS events and projects across 11 countries in 2023. Congratulations to all the grant recipients! These are exciting initiatives, and we look forward to sharing more news as the events and projects...
Helping carers to understand PWS: Kate’s story

Helping carers to understand PWS: Kate’s story

Kate is an adult living with PWS. In this personal blog she writes about what it is like to have PWS and what she wants other people to know about it.   I am writing this article for carers because I have to educate them more on Prader-Willi syndrome. To help...
Ramadan and Prader-Willi syndrome

Ramadan and Prader-Willi syndrome

What is the impact of the month of Ramadan on families living with Prader-Willi syndrome? Azhar Talib, President of Persatuan Sindrom Prader-Willi Malaysia tells us about it: Ramadan is the ninth month of the Islamic calendar. For Muslims all over the world, Ramadan...

IPWSO conference 2025

An update on plans for our 2025 conference Our members usually select our conference venue at our General Assembly, however we did not receive any bids to present at the conference last year. The General Assembly therefore agreed to reopen the process and asked for...