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Ramadan, fasting and PWS

Ramadan, fasting and PWS

Many of the people we work with at IPWSO observe the month of Ramadan. How does the period affect families and in particular how does the aspect of fasting affect people with PWS? Azhar Talib from PWS Malaysia told us more: Fasting during the month of Ramadan is a...
Diagnosis: giving access to the best start in life

Diagnosis: giving access to the best start in life

My name is Nikolinka Yordanova. I am a pediatric endocrinologist and core specialist of our PWS Multidisciplinary team at the First Pediatric Clinic, University Hospital “Sveta Marina“ in Varna, Bulgaria. The head of our Department, Prof. Violeta Iotova has...

PWSA USA conference goes online and open to all!

The PWSA USA’s national convention is going online from 22nd to 26th June, 2021. Over the course of five days, attendees will share ideas and experiences while learning from leaders in the field of PWS. The virtual format makes it possible for more families than...
When to test for Prader-Willi syndrome (PWS)

When to test for Prader-Willi syndrome (PWS)

When to test for Prader-Willi syndrome (PWS) We often hear from parents and doctors, who ask us at what stage they should suspect a diagnosis of PWS and how to obtain a diagnosis. Here are some of the early signs. For greater detail please visit our What is...