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Inaugurada la primera residencia especializada para personas con Síndrome de Prader-Willi en España / Opening of the first group home designed for people with Prader-Willi syndrome in Spain

Inaugurada la primera residencia especializada para personas con Síndrome de Prader-Willi en España / Opening of the first group home designed for people with Prader-Willi syndrome in Spain

El pasado 31 de mayo se inauguró la primera residencia especializada para personas con Síndrome de Prader-Willi en España. A la inauguración asistió la Ministra de Sanidad, Carolina Darias, junto con autoridades regionales y locales. La residencia, denominada “Mil...
XI Conferencia Internacional IPWSO 2022

XI Conferencia Internacional IPWSO 2022

XI Conferencia Internacional IPWSO 2022 (*) University of Limerick – Irlanda 6 al 10 de julio Ya es tiempo que volvamos a reunirnos presencialmente como comunidad global, después de estos difíciles tiempos de pandemia en que hemos estado aislados. IPWSO 2022 ha...
Welcome to PWS China!

Welcome to PWS China!

PWS China has recently joined IPWSO, we asked them to tell us a bit about their work and mission: Prader-Willi Syndrome Care & Support Center, China Since 2017 the Prader-Willi Syndrome Care & Support Center (China) has supported people with PWS in the...
XI Conferencia Internacional IPWSO 2022

What is it like to host an IPWSO conference?

An interview with Gary Brennan, National Development Manager, Prader-Willi Syndrome Association of Ireland, on the International Prader-Willi Syndrome Organisation Conference 6-10 July 2022, Limerick, Ireland How does it feel to be the host for the next international...
What are the effects of COVID-19 on People with PWS?

What are the effects of COVID-19 on People with PWS?

The presentation, course and outcome of COVID-19 infection in people with Prader-Willi syndrome: unexpected findings from an international survey J. E. Whittington, A. J. Holland, D. J. Driscoll, N. Hodebeck-Stuntebeck & A. Hoctor Orphanet Journal of Rare Diseases...