by IPWSO | May 23, 2023 | News
IPWSO is delighted to announce we have awarded grants to support PWS events and projects across 11 countries in 2023. Congratulations to all the grant recipients! These are exciting initiatives, and we look forward to sharing more news as the events and projects...
by IPWSO | Apr 21, 2023 | Blog
Kate is an adult living with PWS. In this personal blog she writes about what it is like to have PWS and what she wants other people to know about it. I am writing this article for carers because I have to educate them more on Prader-Willi syndrome. To help...
by IPWSO | Apr 18, 2023 | Blog
What is the impact of the month of Ramadan on families living with Prader-Willi syndrome? Azhar Talib, President of Persatuan Sindrom Prader-Willi Malaysia tells us about it: Ramadan is the ninth month of the Islamic calendar. For Muslims all over the world, Ramadan...
by IPWSO | Mar 28, 2023 | News
An update on plans for our 2025 conference Our members usually select our conference venue at our General Assembly, however we did not receive any bids to present at the conference last year. The General Assembly therefore agreed to reopen the process and asked for...
by IPWSO | Mar 8, 2023 | Blog
IPWSO interns April and Lauren tell us more about the research going on in China including the work of the PWS Research Group at the Children’s Hospital of Zhejiang University School of Medicine. Introduction Since it was first described in 1956, there has been a lot...
