With thanks to our sponsors
The EJF (Evangelisches Jugend- und Fürsorgewerk) is a nationwide operating, Christian-oriented organization in the social sector. It provides assistance for people of all age groups and beliefs who require special personal and social care. The EJF develops and operates both outpatient and inpatient services for people with disabilities, for children, youth, and families, for homeless and refugee individuals, as well as for seniors.
Since 2001, EJF in Berlin has been offering a syndrome-specific supervised living arrangement for individuals with Prader-Willi syndrome.
Conference Partner
Friends of IPWSO improves the lives of the global PWS community by funding IPWSO’s family support, educational and scientific networking activities. Friends of IPWSO is a United States not-for-profit, committed to raising funds to help those who have Prader-Willi syndrome living throughout the world. Friends have generously provided funds to support travel fellowships for IPWSO’s 2022 Conference. If you would like to make a difference and help Friends of IPWSO raise much needed funds, donate here.
Travel Scholarship Sponsor
Soleno Therapeutics is focused on the development and commercialization of novel therapeutics for the treatment of rare diseases. The company’s lead candidate, DCCR (Diazoxide Choline) Extended-Release tablets, a once-daily oral tablet, is being evaluated for the treatment of Prader-Willi Syndrome.
We recently completed a Phase 3 development program to support a planned FDA new drug application. Our priority is to bring the first approved treatment to patients to manage the most burdensome aspects of this devastating disorder.
Gold Sponsor
Acadia is advancing breakthroughs in neuroscience to elevate life by bringing vital solutions to people who need them most. We developed and commercialized the first and only FDA-approved drug for the treatment of Rett syndrome and the first and only FDA-approved drug to treat hallucinations and delusions associated with Parkinson’s disease psychosis. Our clinical-stage development efforts are focused on Prader-Willi syndrome, Alzheimer’s disease psychosis and multiple other programs targeting neuropsychiatric symptoms in central nervous system disorders. Learn more at Acadia.com.
Silver Sponsor
Palo Biofarma is a leading clinical-stage biotech company dedicated to creating new medicines. Our focus on adenosine signaling drives our innovation. With 6 new drug candidates in different testing phases, notably PBF-999 for Prader-Willi Syndrome, we’re committed to pioneering advancements in medicine. Our mission is grounded in scientific excellence, aimed at reshaping patient care and well-being, alleviating human suffering through cutting-edge advancements.
Silver Sponsor
Prader-Willi Stichting is the patient organization in the Netherlands representing the interests of persons with Prader-Willi Syndrome and the people in their immediate environment such as parents, relatives and caregivers. The PWS community in the Netherlands is relatively small, but large enough to lobby governments, health insurance companies, researchers, hospitals, health care providers and other social organizations through education and information, peer contact, advocacy and international cooperation. We support this conference in Berlin because it’s very important to exchange PWS expertise.
Silver Sponsor
Aardvark Therapeutics is dedicated to bringing novel drugs that activate innate homeostatic pathways to patients living with neurodevelopmental, metabolic and inflammatory disorders.
The lead product, ARD-101, is a first-in-class oral drug that is restricted to the gut which contributes to its safety, yet conveys systemic effects by stimulating gut peptide hormone secretion and gut-brain signaling with broad therapeutic potential. A phase 2 clinical trial in Prader-Willi Syndrome documented excellent safety and hunger control, supporting continued development.
Bronze Sponsor
AME Community Services, Inc. is a family-owned, person-centered company that was founded in 1992 with a commitment to supporting individuals with disabilities to achieve their goals, big or small. AME supports adults and children with Prader-Willi Syndrome and currently serves 38 individuals with PWS in 11 Community Residential Settings. We tailor our services based on individual preferences for how people want or need to be supported to live their best life. AME is located in Minnesota, USA.
Bronze Sponsor
Resilience is a fully Irish owned Health and Social Care provider founded in 2011 in Ennis, Co. Clare, Ireland. The company’s main purpose is to help improve the quality of lives of people with intellectual and physical disabilities. It empowers them to build resilience in overcoming everyday challenges and adversities they have.
Resilience provides services across most of Ireland under two divisions:
Advanced Community Care: We provide the nurses into the home for people (mainly children) who need at home hospital care 24 hours.
Disability Services (Social Care): We provide Residential Care (20 houses), Day Services and Outreach for young adults and older adults with Intellectual Disabilities and Autism.
Bronze Sponsor
Located on Cape Cod, Massachusetts, USA, Latham Centers is a leader in special education and therapeutic services for children and adults with disabilities. We are internationally renowned for our success in working with individuals with Prader-Willi syndrome. Our mission is to create opportunities for independence, self-worth, and happiness for individuals with complex special needs.
Bronze Sponsor
Prader-Willi-Syndrom Vereinigung Deutschland e.V.
The Prader-Willi-Syndrom Vereinigung Deutschland e.V. (PWSVD) is an association of individuals with PWS (Prader-Willi Syndrome) and their families, with over 750 members nationwide. Founded in November 1991, our mission is to raise awareness in the public and promote understanding of PWS and its treatment options. We provide support to those seeking guidance in all aspects of life and sponsor projects to enhance therapy measures. Additionally, we organize workshops and recreational activities for individuals with Prader-Willi Syndrome.
Star Sponsor
Find out more about sponsorship and exhibitor opportunities.
International Community
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for
Families
Find useful guides, research and information to help families manage PWS.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
Information for
Professional Caregivers
Sharing international knowledge among professional service providers throughout the world.