Sign up to our newsletter

Contact Us

Attending the PWSA | USA National Convention

Attending the PWSA | USA National Convention

IPWSO President Tony Holland recently attended and spoke at the PWSA | USA National Convention in Florida, USA: The PWSA | USA National Conventions are always special occasions, and I was delighted to be able to participate in their 2023 event. PWSA | USA was one of...
How we can reduce IPWSO’s environmental impact

How we can reduce IPWSO’s environmental impact

IPWSO CEO Marguerite Hughes has been looking at our environmental impact and how we can make positive changes in how we work: The 2023 Synthesis Report of the Intergovernmental Panel on Climate Change is clear. Climate change is a threat to human well-being and...
Helping carers to understand PWS: Kate’s story

Helping carers to understand PWS: Kate’s story

Kate is an adult living with PWS. In this personal blog she writes about what it is like to have PWS and what she wants other people to know about it.   I am writing this article for carers because I have to educate them more on Prader-Willi syndrome. To help...
Ramadan and Prader-Willi syndrome

Ramadan and Prader-Willi syndrome

What is the impact of the month of Ramadan on families living with Prader-Willi syndrome? Azhar Talib, President of Persatuan Sindrom Prader-Willi Malaysia tells us about it: Ramadan is the ninth month of the Islamic calendar. For Muslims all over the world, Ramadan...
PWS research in China

PWS research in China

IPWSO interns April and Lauren tell us more about the research going on in China including the work of the PWS Research Group at the Children’s Hospital of Zhejiang University School of Medicine. Introduction Since it was first described in 1956, there has been a lot...
Talking about PWS with health professionals in Africa

Talking about PWS with health professionals in Africa

 IPWSO Vice-President, François Besnier, attended the ASPAE conference in February 2023. I was very pleased and motivated to represent IPWSO at the 14th Congress of the African Society of Pediatric and Adolescent Endocrinology which was held in Yaoundé, Cameroon from...