by Farisha Colbourne | Oct 20, 2026 | Blog
We are deeply saddened to share the news of the passing of Katherine (Kate) Towers, who died on 1 July 2026, aged 49. Kate was a valued member of the community, known for her warmth, determination and passionate advocacy for people with PWS. Through sharing her own...
by Shelly Cordner | Sep 16, 2026 | Blog
This blog presents the work of a group of adults with PWS in Germany. Through regular discussions on topics such as leisure, relationships, and work, they share their experiences and recommendations for a more inclusive and self-determined life. We are a group of 12...
by Farisha Colbourne | May 27, 2026 | Blog
Supporting people with PWS requires collaboration, shared expertise, and ongoing conversations between professionals, families, and people with PWS themselves. Across the German-speaking countries, a new and inspiring network of PWS Competence Centres is helping to...
by Shelly Cordner | Apr 23, 2026 | Blog
Our recent consultation meeting brought together PWS Associations and key stakeholders from several countries to discuss vaccination, with a focus on children and adults with PWS and other disabilities. The session featured two expert speakers from University College...
by Farisha Colbourne | Feb 20, 2026 | Blog
On behalf of our Research and Clinical Trials Committee, Tony Holland, President Emeritus, shares reflections on recent progress and ongoing challenges in the development of treatments for hyperphagia in people with Prader-Willi syndrome. In March 2025, the USA Food...
by Shelly Cordner | Dec 9, 2025 | Blog
A Personal Reflection by Salman Shaban, Qatar When my daughter, Soha Shaban, was diagnosed with Prader–Willi Syndrome in 2011 soon after her birth, my world shifted in ways I never expected. What began as a journey filled with uncertainty gradually transformed into...
