by Nora McNairney | Jun 24, 2024 | Blog
Our President’s Reflections I am of an age and a generation where blogs and social media remain a bit of a mystery. I also remember a ‘pre-google era’ when the local library or the school library were the main sources of information – yes there...
by Nora McNairney | Jun 24, 2024 | Blog
As we embark on an new era at IPWSO, Marguerite Hughes, Chief Executive Officer, reflects on her role and looks forward to IPWSO’s continuing growth and success. In 2025 I will be stepping down as IPWSO CEO. I will miss it greatly, in large part because every...
by IPWSO | Apr 10, 2024 | Blog
European Hormone Day returns for a third time on Wednesday, 24 April, uniting the endocrine community across Europe and beyond to raise awareness of the vital role of hormones in health and disease – #BecauseHormonesMatter. Here at IPWSO, we are supporting European...
by IPWSO | Apr 8, 2024 | Blog
Advocating for Hope: IPWSO’s Impact at 2024 African Society for Pediatric and Adolescent Endocrinology (ASPAE) Conference In the realm of rare diseases, every opportunity to connect, advocate, and educate is invaluable. This rings particularly true in relation...
by Shelly Cordner | Jan 12, 2024 | Blog
IPWSO is this month entering the latest phase of its development with the launch of its Strategic Plan 2024-2026. It describes the guiding values that unite our organisation and charts an ambitious way towards our ultimate goal of a world where all people with...
by IPWSO | Dec 21, 2023 | Blog
Karen tells us about her daughter Andrea, the challenges of PWS that the family have faced together, and how Andrea is doing now as she reaches the age of 40. This is my daughter, Andrea Agnew and on December 14th we celebrated her 40th birthday. She was born with...
