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Our Strategic Plan 2024-2026

Our Strategic Plan 2024-2026

IPWSO is this month entering the latest phase of its development with the launch of its Strategic Plan 2024-2026. It describes the guiding values that unite our organisation and charts an ambitious way towards our ultimate goal of a world where all people with...
Flourishing at 40

Flourishing at 40

Karen tells us about her daughter Andrea, the challenges of PWS that the family have faced together, and how Andrea is doing now as she reaches the age of 40. This is my daughter, Andrea Agnew and on December 14th we celebrated her 40th birthday. She was born with...
Nominations for the next IPWSO president

Nominations for the next IPWSO president

IPWSO President Tony Holland talks about the role he has held since 2016 and encourages nominations for his successor in 2025. IPWSO works on three yearly cycles. The international conference and the IPWSO general assembly happens every three years and the President...
Attending the PWSA | USA National Convention

Attending the PWSA | USA National Convention

IPWSO President Tony Holland recently attended and spoke at the PWSA | USA National Convention in Florida, USA: The PWSA | USA National Conventions are always special occasions, and I was delighted to be able to participate in their 2023 event. PWSA | USA was one of...
How we can reduce IPWSO’s environmental impact

How we can reduce IPWSO’s environmental impact

IPWSO CEO Marguerite Hughes has been looking at our environmental impact and how we can make positive changes in how we work: The 2023 Synthesis Report of the Intergovernmental Panel on Climate Change is clear. Climate change is a threat to human well-being and...
Helping carers to understand PWS: Kate’s story

Helping carers to understand PWS: Kate’s story

Kate is an adult living with PWS. In this personal blog she writes about what it is like to have PWS and what she wants other people to know about it.   I am writing this article for carers because I have to educate them more on Prader-Willi syndrome. To help...