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Inaugurada la primera residencia especializada para personas con Síndrome de Prader-Willi en España / Opening of the first group home designed for people with Prader-Willi syndrome in Spain

Inaugurada la primera residencia especializada para personas con Síndrome de Prader-Willi en España / Opening of the first group home designed for people with Prader-Willi syndrome in Spain

El pasado 31 de mayo se inauguró la primera residencia especializada para personas con Síndrome de Prader-Willi en España. A la inauguración asistió la Ministra de Sanidad, Carolina Darias, junto con autoridades regionales y locales. La residencia, denominada “Mil...
Welcome to PWS China!

Welcome to PWS China!

PWS China has recently joined IPWSO, we asked them to tell us a bit about their work and mission: Prader-Willi Syndrome Care & Support Center, China Since 2017 the Prader-Willi Syndrome Care & Support Center (China) has supported people with PWS in the...
What is it like to host an IPWSO conference?

What is it like to host an IPWSO conference?

An interview with Gary Brennan, National Development Manager, Prader-Willi Syndrome Association of Ireland, on the International Prader-Willi Syndrome Organisation Conference 6-10 July 2022, Limerick, Ireland How does it feel to be the host for the next international...
What are the effects of COVID-19 on People with PWS?

What are the effects of COVID-19 on People with PWS?

The presentation, course and outcome of COVID-19 infection in people with Prader-Willi syndrome: unexpected findings from an international survey J. E. Whittington, A. J. Holland, D. J. Driscoll, N. Hodebeck-Stuntebeck & A. Hoctor Orphanet Journal of Rare Diseases...
IPWSO supports Rare Disease Day 2022

IPWSO supports Rare Disease Day 2022

It’s one week until Rare Disease Day which takes place on Monday 28th February. Rare Disease Day is, “the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living...
30 Years of IPWSO: Looking back, looking forward

30 Years of IPWSO: Looking back, looking forward

IPWSO Chief Executive Officer, Marguerite Hughes, reflects on IPWSO’s 30th Year and our future plans.  The new year is both cause for reflection and a time for finalising plans for the future. We do both in the shadow of COVID and in a spirit of solidarity...