by Agnes Hoctor | Dec 11, 2019 | Blog
As 2019 comes to a close, our dear friend, Linda Thornton, will take a few steps away from IPWSO. Linda is known to many people within the world of PWS, but most people may not know the extent of her passionate and tireless commitment to IPWSO. Linda established the...
by Agnes Hoctor | Oct 18, 2019 | Blog
Contributed by Marguerite Hughes, Vice President, IPWSO Hosting educational booths at medical conferences has long been a means by which IPWSO has sought to raise awareness of Prader-Willi syndrome and the services it provides. IPWSO’s recent participation in the...
by Agnes Hoctor | Jun 2, 2019 | Blog
Photo above: Anders receiving his award for participating in IPWSO’s 6th conference in Romania, with one of his own paintings on the wall depicting his holiday in Burma with the Orangutans. Anders’ mother, Jean Phillips-Martinsson, was IPWSO’s first...
by Agnes Hoctor | Nov 12, 2018 | Blog
Gina Mullis is a Kiwi, living and working in Ireland. This was her first experience of a PWS conference and she writes… I was very fortunate to be given the opportunity to attend the IPWSO 5th International Caregiver’s Conference in Munich this year. It was...
by Agnes Hoctor | Oct 9, 2018 | Blog
Maria Benekova, our IPWSO representative from Slovakia and recipient of an educational grant to attend the Caregivers’ Conference in Munich (August/September this year) has written a report telling us a little about life in Slovakia and how, by attending the...
by Agnes Hoctor | Nov 28, 2017 | Blog
40 years awareness of “Rare disease” – Anna and Giuseppe Baschirotto My visit to B.I.R.D. in September 2017 by Verena Gutmann (IPWSO Board Member – Austria) Some weeks ago I visited the B.I.R.D. Institute (Baschirotto Institute of rare disease) in Longare di...
