by IPWSO | Oct 18, 2019 | Blog
Contributed by Marguerite Hughes, Vice President, IPWSO Hosting educational booths at medical conferences has long been a means by which IPWSO has sought to raise awareness of Prader-Willi syndrome and the services it provides. IPWSO’s recent participation in the...
by IPWSO | Jun 2, 2019 | Blog
Photo above: Anders receiving his award for participating in IPWSO’s 6th conference in Romania, with one of his own paintings on the wall depicting his holiday in Burma with the Orangutans. Anders’ mother, Jean Phillips-Martinsson, was IPWSO’s first...
by IPWSO | Nov 12, 2018 | Blog
Gina Mullis is a Kiwi, living and working in Ireland. This was her first experience of a PWS conference and she writes… I was very fortunate to be given the opportunity to attend the IPWSO 5th International Caregiver’s Conference in Munich this year. It was...
by IPWSO | Oct 9, 2018 | Blog
Maria Benekova, our IPWSO representative from Slovakia and recipient of an educational grant to attend the Caregivers’ Conference in Munich (August/September this year) has written a report telling us a little about life in Slovakia and how, by attending the...
by IPWSO | Nov 28, 2017 | Blog
40 years awareness of “Rare disease” – Anna and Giuseppe Baschirotto My visit to B.I.R.D. in September 2017 by Verena Gutmann (IPWSO Board Member – Austria) Some weeks ago I visited the B.I.R.D. Institute (Baschirotto Institute of rare disease) in Longare di...
by IPWSO | Aug 7, 2017 | Blog
By Jackie Gill (UK) It is one of life’s little ironies that before Prader-Willi syndrome (PWS) came into my life I was a very picky eater, and with such a small appetite that I was very underweight until after both my children had been born. My first child was a...
