by IPWSO | Mar 10, 2020 | Blog
Chapter 1 Our story is simple and yet rare. I will be the storyteller (Georgian), not because I would know more (by no means), nor because I would tell better (nor that), but because I want to take on this burden at least. We were two people, a couple, who lived a...
by IPWSO | Mar 4, 2020 | Blog
Jane Cox from the Prader-Willi Syndrome Association of Ireland sends an update on plans for our next international conference. The members of PWSAI (Prader-Willi Syndrome Association of Ireland) are beavering away, along with our partners in IPWSO, getting ready for...
by IPWSO | Jan 28, 2020 | Blog
Charlotte Höybye Department of Endocrinology Karolinska University Hospital Stockholm, Sweden charlotte.hoybye@sll.se Growth Hormone (GH) treatment has been used for treatment of children with PWS for the past 30 years. In contrast, GH treatment has only recently been...
by IPWSO | Dec 11, 2019 | Blog
Contributed by Dr Janice Forster PWS is known for hyperphagia and temper outbursts. Researchers have discovered that temper tantrums precede the typical food related behaviors in early childhood. For all children, including those who have PWS, ...
by IPWSO | Dec 11, 2019 | Blog
contributed by Georgina Loughnan Georgina Loughnan (IPWSO Board member) Constanze Laemmer (paediatrician and nutritionist), Norbert Hodebeck-Stuntebeck (from the Professional Provider Caregiver Board) visited Hanoi, Vietnam, to present a one-day Prader-Willi Syndrome...
by IPWSO | Dec 11, 2019 | Blog
As 2019 comes to a close, our dear friend, Linda Thornton, will take a few steps away from IPWSO. Linda is known to many people within the world of PWS, but most people may not know the extent of her passionate and tireless commitment to IPWSO. Linda established the...
