Tony Holland, IPWSO President, writes about Universal Health Coverage (UHC) and his personal experience in the UK:

The COVID-19 pandemic has highlighted the importance of having access to medical care that is affordable. This is particularly important for people with rare disorders, such as Prader-Willi Syndrome, where there may be a range of often complex health needs.

Being from the UK I take for granted the National Health Service (NHS) and the fact that treatment is free.  I was born the year it was established and have worked in it for the whole of my professional life.

Rare Diseases International and Eurordis are campaigning for universal health coverage – they are asking organisations such as IPWSO as well as country bodies, such as PWS associations, to advocate at a national level for the implementation of UHC that is inclusive of rare diseases.

Watch out for their campaign launching in September 2020, and UHC Day on 12th December. We will also keep you updated.

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