by IPWSO | Jun 14, 2023 | Blog
IPWSO CEO Marguerite Hughes has been looking at our environmental impact and how we can make positive changes in how we work: The 2023 Synthesis Report of the Intergovernmental Panel on Climate Change is clear. Climate change is a threat to human well-being and...
by IPWSO | Apr 21, 2023 | Blog
Kate is an adult living with PWS. In this personal blog she writes about what it is like to have PWS and what she wants other people to know about it. I am writing this article for carers because I have to educate them more on Prader-Willi syndrome. To help...
by IPWSO | Apr 18, 2023 | Blog
What is the impact of the month of Ramadan on families living with Prader-Willi syndrome? Azhar Talib, President of Persatuan Sindrom Prader-Willi Malaysia tells us about it: Ramadan is the ninth month of the Islamic calendar. For Muslims all over the world, Ramadan...
by IPWSO | Mar 8, 2023 | Blog
IPWSO interns April and Lauren tell us more about the research going on in China including the work of the PWS Research Group at the Children’s Hospital of Zhejiang University School of Medicine. Introduction Since it was first described in 1956, there has been a lot...
by IPWSO | Mar 1, 2023 | Blog
IPWSO Vice-President, François Besnier, attended the ASPAE conference in February 2023. I was very pleased and motivated to represent IPWSO at the 14th Congress of the African Society of Pediatric and Adolescent Endocrinology which was held in Yaoundé, Cameroon from...
by IPWSO | Dec 2, 2022 | Blog
Our Famcare Board has written a fantastic collection of guides to help families navigate the key issues affecting people with PWS. A guide to rituals and obsessions A guide to the transitional years After the Diagnosis, Relief and Acceptance Basics of a healthy adult...
