by IPWSO | Dec 8, 2023 | Blog
IPWSO President Tony Holland talks about the role he has held since 2016 and encourages nominations for his successor in 2025. IPWSO works on three yearly cycles. The international conference and the IPWSO general assembly happens every three years and the President...
by IPWSO | Jun 27, 2023 | Blog
IPWSO President Tony Holland recently attended and spoke at the PWSA | USA National Convention in Florida, USA: The PWSA | USA National Conventions are always special occasions, and I was delighted to be able to participate in their 2023 event. PWSA | USA was one of...
by IPWSO | Jun 14, 2023 | Blog
IPWSO CEO Marguerite Hughes has been looking at our environmental impact and how we can make positive changes in how we work: The 2023 Synthesis Report of the Intergovernmental Panel on Climate Change is clear. Climate change is a threat to human well-being and...
by IPWSO | Apr 21, 2023 | Blog
Kate is an adult living with PWS. In this personal blog she writes about what it is like to have PWS and what she wants other people to know about it. I am writing this article for carers because I have to educate them more on Prader-Willi syndrome. To help...
by IPWSO | Apr 18, 2023 | Blog
What is the impact of the month of Ramadan on families living with Prader-Willi syndrome? Azhar Talib, President of Persatuan Sindrom Prader-Willi Malaysia tells us about it: Ramadan is the ninth month of the Islamic calendar. For Muslims all over the world, Ramadan...
by IPWSO | Mar 8, 2023 | Blog
IPWSO interns April and Lauren tell us more about the research going on in China including the work of the PWS Research Group at the Children’s Hospital of Zhejiang University School of Medicine. Introduction Since it was first described in 1956, there has been a lot...
