by Shelly Cordner | Jan 5, 2022 | Blog
IPWSO Chief Executive Officer, Marguerite Hughes, reflects on IPWSO’s 30th Year and our future plans. The new year is both cause for reflection and a time for finalising plans for the future. We do both in the shadow of COVID and in a spirit of solidarity...
by IPWSO | Nov 23, 2021 | Blog
How can we encourage the development of good quality support and care for adults with Prader-Willi syndrome? A blog written by François Besnier for Prader-Willi France and shared with permission. These few lines are personal reflections, inspired and developed...
by IPWSO | Nov 23, 2021 | Blog
Earlier this month we held a Zoom meeting to bring together the PWS community in Africa. The purpose of the meeting was to share information, create new links and to develop a better understanding of the needs of families living on the continent. IPWSO currently has...
by IPWSO | Sep 13, 2021 | Blog
As part of our work celebrating IPWSO’s 30th Anniversary in 2021, we asked members of the global PWS community to make films to highlight the challenges they face, as well as the achievements and developments that are happening around the world. We hope you...
by IPWSO | Sep 7, 2021 | Blog
Urs Eiholzer from the Centre for Paediatric Endocrinology, Zurich and member of our Clinical and Scientific Advisory Board tells us more about the latest research into PWS and Hypogonadism: Although hypogonadism is prevalent in males and females with PWS, knowledge...
by IPWSO | Sep 2, 2021 | Blog
Verena Gutmann, chair of our Famcare Committee introduces our latest publication: In our newest Famcare article you can read about the importance of a well-structured day for adults with PWS and the main features to be considered when embarking on such activities. We...
