by IPWSO | May 14, 2021 | Blog
Lauren’s story has not been an easy one – on Lauren – or her family. Her mum Joanne told us more… Lauren is a twin – the youngest of five children. From Lauren’s diagnosis, at four months, our family threw ourselves into supporting...
by IPWSO | May 4, 2021 | Blog
Many of the people we work with at IPWSO observe the month of Ramadan. How does the period affect families and in particular how does the aspect of fasting affect people with PWS? Azhar Talib from PWS Malaysia told us more: Fasting during the month of Ramadan is a...
by IPWSO | May 4, 2021 | Blog
My name is Nikolinka Yordanova. I am a pediatric endocrinologist and core specialist of our PWS Multidisciplinary team at the First Pediatric Clinic, University Hospital “Sveta Marina“ in Varna, Bulgaria. The head of our Department, Prof. Violeta Iotova has...
by IPWSO | Mar 3, 2021 | Blog
When to test for Prader-Willi syndrome (PWS) We often hear from parents and doctors, who ask us at what stage they should suspect a diagnosis of PWS and how to obtain a diagnosis. Here are some of the early signs. For greater detail please visit our What is...
by IPWSO | Feb 26, 2021 | Blog
The Clinical and Scientific Advisory Board (CSAB) of IPWSO has published a new version of the document: “Sex hormones, fertility and sexuality in Prader-Willi syndrome”. In the article you can read about treatment with sex hormones in PWS and the effects of sex...
by IPWSO | Feb 22, 2021 | Blog
Here at IPWSO we are celebrating the lives of people with Prader-Willi syndrome this Rare Disease Day 2021! The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on peoples’...
