We were delighted to jointly host a webinar on 8th September 2022 with the African Society for Paediatric and Adolescent Endocrinology.
We welcomed 50 participants from around the continent of Africa (and beyond) to a webinar to discuss the endocrinology of Prader-Willi syndrome and some of the common issues and challenges faced by a person with Prader-Willi syndrome.
The meeting was opened by Professor Tony Holland, President of IPWSO and Professor Suzanne Sap, President of ASPAE. After the introductions Tony Holland gave an overview of the syndrome and some of the key medical issues that commonly arise. We then heard presentations from Dr Charlotte Höybye an Endocrinologist at the Karolinska Institute, Sweden on the role of the endocrinologist in supporting the care of people with PWS and Dr Engela Honey a Paediatrician at the University of Pretoria, South Africa on identifying/diagnosing and supporting families in Africa, drawing on her particular experiences from South Africa. Engela was joined by Karin Clarke from Prader-Willi Syndrome Support (South Africa).
The presentations were followed by a question and answer session.
A recording of the webinar is now available below. If you have any questions about the care and treatment of people with PWS please do not hesitate to contact us.