Thanks to Global Genes we have been able to provide some new translations to benefit the PWS community in China.
IPWSO is a recipient of the 2022 Health Equity in RARE Patient Impact Grant sponsored by Global Genes. Thanks to this award, IPWSO’s project entitled Developing educational resources on Prader-Willi syndrome for Arabic, Turkish, and Mandarin speakers, is made possible.
We hope these translations will help many more professionals and families to provide the best care for people with PWS.
We have also used this grant to translate key informational videos about PWS made at our recent conference into Arabic and Mandarin. These videos are presented by international experts and provide key information on issues affecting people with PWS.
Please help us to share this information by forwarding these links on to people in your network.
国际普拉德-威利综合征组织 (IPWSO) 荣获了 Global Genes 所赞助的“2022 年卫生公平之罕见病患者影响补助金”。有赖于这个奖项，IPWSO 名为“为讲阿拉伯语、土耳其语和普通话的人士开发普拉德–威利综合征教育资源”的项目得以成功完成。
我们希望这些翻译版文件能帮助更多专业人士和家庭为普拉德-威利综合征患者提供最好的护理。
在我们最近的会议中，一些重要信息被制作成了影片。我们利用这笔补助金将这些影片翻译成了阿拉伯语和普通话。这些影片由国际专家呈现，为影响普拉德-威利综合征患者的问题提供了重要信息。
请将上述文件转发给您交际网络中的人士，以便帮助我们分享这些信息。
Filmed at the 11th IPWSO Conference in Limerick, Ireland, 2022, Maithé Tauber and Charlotte Höybye talk about Growth Hormone as treatment for children and adults with Prader-Willi syndrome.
拍摄于 2022 年在爱尔兰利默里克举行的第 11 届国际普拉德-威利综合征组织会议，Maithé Tauber 和 Charlotte Höybye 谈论生长激素作为普拉德-威利综合征儿童和成人患者的治疗方法。
Filmed at the 11th IPWSO Conference in Limerick, Ireland, 2022, Dr Harold van Bosse presents on Orthopaedic issues in Prader-Willi Syndrome.
拍摄于 2022 年在爱尔兰利默里克举行的第 11 届国际普拉德-威利综合征组织会议，Harold van Bosse 博士讲解普拉德-威利综合征中的矫形问题。
Filmed at the 11th IPWSO Conference in Limerick, Ireland, 2022, Georgina Loughnan talks about the management of obesity in people with Prader-Willi syndrome.
拍摄于 2022 年在爱尔兰利默里克举行的第 11 届国际普拉德-威利综合征组织会议，Georgina Loughnan 谈论普拉德-威利综合征患者的肥胖症管理。
Filmed at the 11th IPWSO Conference in Limerick, Ireland, 2022, Dr Ann Scheimann answers commonly asked questions about Gastrointestinal issues in Prader-Willi Syndrome.
拍摄于 2022 年在爱尔兰利默里克举行的第 11 届国际普拉德-威利综合征组织会议，Ann Scheimann 博士回答关于普拉德-威利综合征胃肠道问题的常见问题。
Filmed at the 11th IPWSO Conference in Limerick, Ireland, 2022, Olivia Veatch, Ph.D. and Althea Robinson Shelton, M.D. discuss sleep and sleep disorders in people with Prader-Willi syndrome.
拍摄于 2022 年在爱尔兰利默里克举行的第 11 届国际普拉德-威利综合征组织会议，Olivia Veatch 和 Althea Robinson Shelton 讨论普拉德-威利综合征患者的睡眠和睡眠障碍问题。
Filmed at the 11th IPWSO Conference in Limerick, Ireland, 2022, Constanze Lämmer gives advice on how to manage nutrition for children with Prader-Willi syndrome.
于 2022 年在爱尔兰利默里克举行的第 11 届 IPWSO 会议上拍摄，Constanze Lämmer 就如何管理普拉德-威利综合征患儿的营养提供建议。
We are working with PWS China to add the videos to their video platform so they can be disseminated in China.
The English Language versions of these videos can be found on IPWSO’s YouTube channel.