by IPWSO | Oct 13, 2022 | Blog
Thanks to Global Genes we have been able to provide some new translations to benefit the PWS community in China. IPWSO is a recipient of the 2022 Health Equity in RARE Patient Impact Grant sponsored by Global Genes. Thanks to this award, IPWSO’s project entitled...
by IPWSO | Sep 22, 2022 | Blog
We were delighted to jointly host a webinar on 8th September 2022 with the African Society for Paediatric and Adolescent Endocrinology. We welcomed 50 participants from around the continent of Africa (and beyond) to a webinar to discuss the endocrinology of...
by IPWSO | Aug 26, 2022 | Blog
The Professional Providers and Caregivers Board of IPWSO recently conducted a survey looking for evidence of employment and work placements opportunities for people with PWS around the world. The responses from the survey revealed the following points. Opportunities...
by IPWSO | Aug 25, 2022 | News
We are hosting a webinar with ASPAE about endocrinology and Prader-Willi syndrome in Africa: at 5pm West Africa Time on Thursday 8th September 2022. Prader-Willi syndrome (PWS) is a complex and rare neurodevelopmental condition. Studies have shown that between 1 in...
by IPWSO | Aug 8, 2022 | News
The General Assembly is the decision-making body of IPWSO, where IPWSO members can elect the Trustees, influence future plans and hear reports from the past 3 years. The General Assembly of IPWSO was held at 5pm Irish Standard Time on Sunday 10th July 2022 at the...
