by IPWSO | Mar 1, 2023 | Blog
IPWSO Vice-President, François Besnier, attended the ASPAE conference in February 2023. I was very pleased and motivated to represent IPWSO at the 14th Congress of the African Society of Pediatric and Adolescent Endocrinology which was held in Yaoundé, Cameroon from...
by IPWSO | Jan 16, 2023 | News
We have launched a new round of funding for families and professionals to organise PWS projects in countries where they are needed most. IPWSO is offering microgrants for small projects to support the efforts of individuals and groups who are working to improve the...
by IPWSO | Dec 2, 2022 | Blog
Our Famcare Board has written a fantastic collection of guides to help families navigate the key issues affecting people with PWS. A guide to rituals and obsessions A guide to the transitional years After the Diagnosis, Relief and Acceptance Basics of a healthy adult...
by IPWSO | Nov 23, 2022 | News
We have launched a new round of funding for families and professionals to organise PWS workshops in countries where events are needed most. Thanks to the support of Friends of IPWSO (USA), the Conference and Workshops Committee of IPWSO is able to offer funding to...
by IPWSO | Nov 22, 2022 | Blog
We have a new guide from our Famcare Board which looks at how to support a person with PWS to manage their temperature. Some time ago our advice line was contacted by a person with PWS who asked how hot their bath should be. This was a good question. People with PWS...
