by IPWSO | Oct 9, 2018 | Blog
Maria Benekova, our IPWSO representative from Slovakia and recipient of an educational grant to attend the Caregivers’ Conference in Munich (August/September this year) has written a report telling us a little about life in Slovakia and how, by attending the...
by IPWSO | Nov 28, 2017 | Blog
40 years awareness of “Rare disease” – Anna and Giuseppe Baschirotto My visit to B.I.R.D. in September 2017 by Verena Gutmann (IPWSO Board Member – Austria) Some weeks ago I visited the B.I.R.D. Institute (Baschirotto Institute of rare disease) in Longare di...
by IPWSO | Aug 7, 2017 | Blog
By Jackie Gill (UK) It is one of life’s little ironies that before Prader-Willi syndrome (PWS) came into my life I was a very picky eater, and with such a small appetite that I was very underweight until after both my children had been born. My first child was a...
by IPWSO | Jun 29, 2017 | Blog
Earlier this year, I was invited to become a member of the Patient Council of the European Association for the Study of Obesity (EASO), to represent people affected by PWS. I was then kindly invited to attend the 24th European Congress on Obesity in Portugal as a...
