by Nora McNairney | Mar 4, 2020 | Blog
Jane Cox from the Prader-Willi Syndrome Association of Ireland sends an update on plans for our next international conference. The members of PWSAI (Prader-Willi Syndrome Association of Ireland) are beavering away, along with our partners in IPWSO, getting ready for...
by Nora McNairney | Jan 28, 2020 | Blog
Charlotte Höybye Department of Endocrinology Karolinska University Hospital Stockholm, Sweden charlotte.hoybye@sll.se Growth Hormone (GH) treatment has been used for treatment of children with PWS for the past 30 years. In contrast, GH treatment has only recently been...
by Nora McNairney | Dec 11, 2019 | Blog
Contributed by Dr Janice Forster PWS is known for hyperphagia and temper outbursts. Researchers have discovered that temper tantrums precede the typical food related behaviors in early childhood. For all children, including those who have PWS, ...
by Nora McNairney | Dec 11, 2019 | Blog
contributed by Georgina Loughnan Georgina Loughnan (IPWSO Board member) Constanze Laemmer (paediatrician and nutritionist), Norbert Hodebeck-Stuntebeck (from the Professional Provider Caregiver Board) visited Hanoi, Vietnam, to present a one-day Prader-Willi Syndrome...
by Nora McNairney | Dec 11, 2019 | Blog
As 2019 comes to a close, our dear friend, Linda Thornton, will take a few steps away from IPWSO. Linda is known to many people within the world of PWS, but most people may not know the extent of her passionate and tireless commitment to IPWSO. Linda established the...
by Nora McNairney | Oct 18, 2019 | Blog
Contributed by Marguerite Hughes, Vice President, IPWSO Hosting educational booths at medical conferences has long been a means by which IPWSO has sought to raise awareness of Prader-Willi syndrome and the services it provides. IPWSO’s recent participation in the...
