by IPWSO | Mar 3, 2021 | News
The PWSA USA’s national convention is going online from 22nd to 26th June, 2021. Over the course of five days, attendees will share ideas and experiences while learning from leaders in the field of PWS. The virtual format makes it possible for more families than...
by IPWSO | Mar 3, 2021 | Blog
When to test for Prader-Willi syndrome (PWS) We often hear from parents and doctors, who ask us at what stage they should suspect a diagnosis of PWS and how to obtain a diagnosis. Here are some of the early signs. For greater detail please visit our What is...
by IPWSO | Dec 8, 2020 | Blog
Janneth and her husband are building a farm in Colombia to provide employment for their 13 year old son as he grows up. Granjeritos de Alejandria is a family business, created by Cristian and Janneth and their two young children Juan Alejandro and María Alejandra....
by Nicki Francomb | Aug 24, 2020 | Blog
This is one of the most common questions asked particularly by new parents and family members of a new-born baby or child with PWS. The syndrome is rare and in many parts of the world there is limited access to support and information. Most people, including many...
by IPWSO | May 13, 2020 | Blog
Karin writes about life with her daughter in South Africa in a post originally shared on the Prader-Willi Syndrome Support – South Africa facebook page and reproduced here with permission. People with Prader-Willi syndrome (PWS) have some quite unusual traits...
