by Nora McNairney | Nov 30, 2023 | News
Opportunities to attend the fifteenth African Society of Paediatric and Adolescent Endocrinology Congress on 7 & 8 March 2024, Algiers, Algeria. In order to share knowledge about Prader-Willi syndrome (PWS) around the world, IPWSO is delighted to offer a limited...
by Nora McNairney | Nov 15, 2023 | News
Please support our Advice Line Appeal Help us be there for people with PWS in parts of the world with little support. This month we’re raising funds to help people with PWS access our vital advice line. Your donations will provide essential life-saving advice for...
by Nora McNairney | Oct 31, 2023 | News
We are hosting a meeting about the key features and challenges of Prader-Willi syndrome for families from Ukraine on November 21st at 7 pm (EET, Ukraine time). The meeting will feature a presentation by Dr. Susanne Blichfeldt and will be fully translated into...
by Nora McNairney | Oct 2, 2023 | News
Applications are now welcome for funding for PWS Conference and Workshops! Thanks to the support of Friends of IPWSO (USA), the Conference and Workshops Committee of IPWSO is able to offer funding to individuals and groups who are interested in planning and hosting a...
by Nora McNairney | Oct 2, 2023 | News
We have launched a new round of funding for families and professionals to organise PWS projects in countries where they are needed most. IPWSO is offering microgrants for small projects to support the efforts of individuals and groups who are working to improve the...
by Nora McNairney | Jun 27, 2023 | Blog
IPWSO President Tony Holland recently attended and spoke at the PWSA | USA National Convention in Florida, USA: The PWSA | USA National Conventions are always special occasions, and I was delighted to be able to participate in their 2023 event. PWSA | USA was one of...
by Nora McNairney | Jun 14, 2023 | Blog
IPWSO CEO Marguerite Hughes has been looking at our environmental impact and how we can make positive changes in how we work: The 2023 Synthesis Report of the Intergovernmental Panel on Climate Change is clear. Climate change is a threat to human well-being and...
by Nora McNairney | May 23, 2023 | News
IPWSO is delighted to announce we have awarded grants to support PWS events and projects across 11 countries in 2023. Congratulations to all the grant recipients! These are exciting initiatives, and we look forward to sharing more news as the events and projects...
by Nora McNairney | Apr 21, 2023 | Blog
Kate is an adult living with PWS. In this personal blog she writes about what it is like to have PWS and what she wants other people to know about it. I am writing this article for carers because I have to educate them more on Prader-Willi syndrome. To help...
by Nora McNairney | Apr 18, 2023 | Blog
What is the impact of the month of Ramadan on families living with Prader-Willi syndrome? Azhar Talib, President of Persatuan Sindrom Prader-Willi Malaysia tells us about it: Ramadan is the ninth month of the Islamic calendar. For Muslims all over the world, Ramadan...
